Saturday, October 27, 2012
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What we do
By Debra Lynn Alt. A song about a mother wishing someone had told her how to prevent CMV from disabling her child.
In full color. By Lisa Sauders
Table setting and germ prevention. By Lisa Saunders
By Lisa Saunders
Elizabeth and the Miracle Dog Riley
Available as free e-book or in softcover from Amazon.
By Lisa Saunders
Lisa Saunders with CT Governor Malloy at CMV bill signing in 2015
Elizabeth on last family vacation with big sister. Elizabeth died 2006 at 16 during cCMV-related seizure.
Moms/Caregivers/Teachers of toddlers at greater risk for #1 birth defects virus, cytomegalovirus (CMV).
New York Stop CMV
What we do
Media: NY and CMV
- NY Senate passes bill
- "Buffalo Gals" come out against CMV
- "Elizabeth's Law" Proposed
- New York Times exposes CMV
- Mom Brandi supports CMV Legislation
- Fighting CMV One Step at a Time (p.28)
- Challenge for Change: Walking across NY to raise awareness of CMV
- Weary Grandparents Seek Ride to Speed CMV Awareness
- Granny Stop CMV Erie Canalway Challenge
- Stop CMV Shirt, Hand, Rock Syracuse Woman Magazine
Song: "Had I Known (about CMV)". Click image to watch
By Debra Lynn Alt. A song about a mother wishing someone had told her how to prevent CMV from disabling her child.
Why Tell Women about CMV?
NY CMV Parents/Professionals
Once Upon a Placemat: A Table Setting Tale
In full color. By Lisa Sauders
Once Upon a Placemat Coloring Book
Table setting and germ prevention. By Lisa Saunders
Anything But a Dog! The perfect pet for a girl with congenital CMV
By Lisa Saunders
Japan Translates U.S. CMV Mom's Book
Elizabeth and the Miracle Dog Riley
Fairytale by grandfather inspired by death of child from cCMV
Available as free e-book or in softcover from Amazon.
Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus
By Lisa Saunders
Costs of cCMV
- Health Care Costs of cCMV, Grosse,(CDC)2018
- Newborn Screening for CMV Found Cost Effective(Faster dx, treatment may lead to less severe hearing loss), Walker, 2016
- Cost-effectiveness of Universal and Targeted Newborn Screening for Congenital Cytomegalovirus Infection, Gantt, 2016
- Commentary: "Cost‐effectiveness of universal and targeted newborn screening for congenital cytomegalovirus infection," Hilditch, 2018
- Societal costs of severe hearing loss, Mohr, 2000
- Cochlear Implant Costs, 2020
- Health Care Costs, Modlin, 2004
- (Fee to read): Making dollars and sense out of a screening programme, Griffiths, 2017
Connecticut Governor Passes CMV Bill
Lisa Saunders with CT Governor Malloy at CMV bill signing in 2015
Face of Congenital CMV
Elizabeth on last family vacation with big sister. Elizabeth died 2006 at 16 during cCMV-related seizure.
Childcare Providers Against CMV
- Mission of Childcare Providers Against CMV
- About Lisa Saunders, Founder, Childcare Providers Against CMV
- Lisa's CMV in Childcare presentation
- CT Childcare Providers Against CMV
- CT DPH FLYER and Web contenct
- Teaching Tool Kit for Childcare Centers and Families
- Clinical Advisor: CT CMV Law
- Newborn Screening for CMV Found Cost Effective Interview for MedPage by Dr Sanjay Gupta "Gupta Guide"
- Cost Effectiveness of Newborn Screening
- Why Universal Newborn Screening
- CMV Study Recruits Pregnant Women
- Lisa's CMV CT PowerPoint
- One Page cCMV Fact Sheet plus Bibliography by Lisa Saunders
- Chart of cCMV compared to other causes of disabilities
- CDC's flyer: What Women Should Know About Cytomegalovirus (CMV)
- CT's HB5147 (2014) webpage
- CT's Most Recent HB5147 Text (2014)
- CMV Contacts for Connecticut, Utah and U.S.
- Passed bill: Utah’s H.B. 81
- From Lisa to CT Politicians
Free Downloadable Teaching Kit
Get CMV Newsletter
About Congenital CMV
- Cornell University Features CMV
- Fox CT: New law in Connecticut to fight number one viral cause of birth defects
- Mystic Mom 'Overwhelmed' by Governor Signing Law on ‘Stealth Virus’ That Can Catch Pregnant Women Unaware
- New Cytomegalovirus (CMV) Law in Connecticut
- Birth Defect Prevention Month
- CT Magazine June 2015
- Fox CT: Moms Fight for CMV Law
- News 8 at CT Capitol RE: CMV
- Connecticut Magazine blog: Mystic Mom Raises Awareness of ‘Stealth Virus’ That Can Catch Pregnant Women Unaware
- News 8: Preventing Congenital CMV During Pregnancy
- Silent virus a rare, dangerous risk for the unborn
- CMV Fact Sheet for Media
- Get cCMV education bill passed in your state
- Fox CT Dr & Mom
- CT NOW: Mommy Minute
- Grace Magazine features Elizabeth & cCMV
- Utah 1st State to Mandate cCMV education
- Current CMV Trial--need participants
- CMV memoir--Anything But a Dog! The perfect pet for a girl with congenital CMV
- Dr. Balch, Saunders, Barry on Health Watch
- Study: Cytomegalovirus as an occupational risk in daycare educators
- CDC: People who care for infants and children
- Mystic River Press
- Lisa on USA 9 News
- Hartford Courant
- Lisa's PowerPoint Presentation
- News clip on Daycare
- What Child Care Providers Should Know About Cytomegalovirus (CMV), California Childcare Health Program
- Flyer: CMV in Child Care (Australia)
- Healthy Child--Day care page
- CDC: CMV Prevention Flyer
- Pregnant w/CMV?
- CDC Facts about CMV
- Watch Lisa introduce CMV Book
Join Forces with cCMV Non-Profits
CMV Media Coverage
- New York Times: CMV Is a Greater Threat to Infants Than Zika, but Far Less Often Discussed
- Coping with CMV (TV News)
- Feb. is Prenatal Infection Month
- What every pregnant woman needs to know
- June: cCMV Awareness Month
- Lisa's CMV Radio Interview
- Her mission is awareness
- FitPregnancy Report
- CDC: Pregnant Women Don't Know about CMV
- CMV Causes Miscarriages
- Pediatrician's CMV Lecture
- Elizabeth/CMV on Mommage
- Stop CMV Rep/Fox News
- CMV Overview by Dr.
- OG/GYN's Warning Pregnant Women
- Disability Magazines
- CMV and Hearing Loss
- 2008 CMV Registry Newsletter
- CMV Support Group Newsletter (from UK)
- Latest Research and Treatment
- Treating Pregnant Women with antibodies
- Treating Pregnant Women with oral ganciclovir
- Washing Our Hands of the CMV Epidemic
- CDC CMV Podcasts
- CDC Podcasts
- Disability Magazines
Releases/Stories by/about Lisa and CMV
CMV Vaccine Updates
Followers
Stories of children born with congenital CMV
Blog Archive
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2012
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October
(11)
- 2012 cCMV conference in San Francisco
- Talk about Elizabeth and CMV
- CMV Brochure--CDC
- Raising Awareness only $2.99
- Riley is interested in my book about my daughter
- Rachel and I at cCMV conference in CA
- Why I do what I do
- Pregnant women: Don't share food or mouth kisses
- CMV Program and Abstracts
- 2012 Conference starts on Monday!
- Congenital CMV Conferences & International CMV/Bet...
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October
(11)
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