Congenital CMV Foundations and how they help women of childbearing age protect their pregnancies.

CMV FOUNDATIONS IN THE U.S.

Congenital CMV Disease Research, Clinic & Registry

Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, CMV Registry, CMV Research and CMV Clinic. The CMV Registry supports CMV research, disseminates information and provides parent support. Visit: Dr. Demmler-Harrison’s Blog. Contact: 832-824-4330, gjdemmle@texaschildrens.org

National CMV Foundation 

“At the National CMV Foundation, we work to inform and educate others on specific prevention measures to protect against the risk of CMV infection.” They have a great CMV Q. and A; simple flyers for downloading, and ways to get involved. 

Congenital Cytomegalovirus Foundation 

Lenore Pereira, Ph.D., Founder of Congenital Cytomegalovirus Foundation, and Professor, Cell and Tissue Biology Department, University of California San Francisco.  The Congenital CMV Foundation raises awareness about maternal testing for first infection during pregnancy, newborn testing and the need to develop a vaccine. Excellent research papers available on the website. Contact: lenore.pereira@ucsf.edu

National CMV Registry for Pregnant Women (part of the CMV Research Foundation)

Stuart Adler, M.D., Professor Emeritus of Pediatrics and Professor of Microbiology and Immunology, Virginia Commonwealth University. He organized the National CMV Registry for Pregnant Women. Contact: sadler@vcu.edu

OTHER COUNTRIES: 

• Congenital CMV Association of Australia
• Canadian CMV Foundation
• United Kingdom—CMV Action
• TORCH Association Japan on Facebook (you can click on "See Translation."