Newborns with symptomatic and asymptomatic congenital cytomegalovirus (CMV)

I am not a doctor, so I collected fliers, web content and opinions to consider: 

FROM THE NATIONAL CMV FOUNDATION:

Next Steps After a CMV Diagnosis

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MINNESOTA

Minnesota now tests ALL newborns for CMV and makes the following recommendations for those diagnosed with congenital CMV: Congenital Cytomegalovirus--Overview 

https://www.health.state.mn.us/people/newbornscreening/program/cmv/index.html

Congenital Cytomegalovirus Frequently Asked Questions

Families

Providers

For submitters

Information specific for families: 

https://www.health.state.mn.us/people/newbornscreening/program/cmv/faq.html

OPINIONS FROM EXPERTS

1) Asymptomatic congenital cytomegalovirus (CMV)

"If an infant is known to have passed the newborn hearing screen but has tested positive for CMV, the most recent JCIH [Joint Committee on Infant Hearing] statement recommends a full pediatric audiology evaluation by 3 months of age and then future monitoring “every 12 months to age 3 or at shorter intervals based on parent/provider concerns," stated Brenda K. Balch, MD, American Academy of Pediatrics Early Hearing Detection & Intervention Connecticut Chapter Champion (CMV - An often unknown cause of hearing loss, 2019). 

Another opinion: Dr. Gail Demmler-Harrison said, "I actually suggest every 6 months for 3 years, then annually thereafter, or soon if concerns" (Feb. 2023)

2) Symptomatic congenital cytomegalovirus (CMV)

General opinion relevant to any state: "A newborn or infant diagnosed with congenital CMV infection should be seen/evaluated/consulted by an expert in pediatric infectious diseases.  These experts may be found at most children's hospitals and major medical centers. While most babies with congenital CMV infection have no symptoms, and will not experiencer long term consequences, some infants do have disease and sequelae from congenital CMV, so it is important to have the baby fully evaluated as early as possible, to see if they meet criteria for antiviral treatment and/or special monitoring. All babies, whether symptoms or not, are at risk for hearing loss, and this hearing should always be monitored carefully in all babies born with congenital CMV infection. Hearing can be monitored by a pediatric audiologist or a pediatric otolaryngologist/ENT specialist, or the baby's pediatrician."