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Congenital CMV

Moms/Caregivers/Teachers of toddlers at greater risk for #1 birth defects virus, cytomegalovirus (CMV).

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Thursday, December 7, 2017

Celebrate Handwashing Awareness Week

To end CMV birth defects: Celebrate Handwashing Awareness Week
Posted by Lisa Saunders at 7:06 AM No comments:
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Memoir by Lisa Saunders

Memoir by Lisa Saunders
Click book cover, then on "read sample"

Media: NY and CMV

  • NY Senate passes bill
  • "Buffalo Gals" come out against CMV
  • "Elizabeth's Law" Proposed
  • New York Times exposes CMV
  • Mom Brandi supports CMV Legislation
  • Fighting CMV One Step at a Time (p.28)
  • Challenge for Change: Walking across NY to raise awareness of CMV
  • Weary Grandparents Seek Ride to Speed CMV Awareness
  • Granny Stop CMV Erie Canalway Challenge
  • Stop CMV Shirt, Hand, Rock Syracuse Woman Magazine

Song: "Had I Known (about CMV)". Click image to watch

Song: "Had I Known (about CMV)". Click image to watch
By Debra Lynn Alt. A song about a mother wishing someone had told her how to prevent CMV from disabling her child.

Why Tell Women about CMV?

  • June National CMV Awareness Month
  • Fighting CMV One Step at a Time
  • Minorities at Higher CMV Risk
  • Role of Prenatal CMV Education

NY CMV Parents/Professionals

  • Charlotte
  • Noah
  • Leo
  • Chief
  • Samantha
  • Elise
  • Elizabeth Saunders
  • Sunil K. Sood, MD
  • Nancy M Stellato, RN, MSN
  • Nellie J. Brown, MS, CIH

Once Upon a Placemat: A Table Setting Tale

Once Upon a Placemat: A Table Setting Tale
In full color. By Lisa Sauders

Once Upon a Placemat Coloring Book

Once Upon a Placemat Coloring Book
Table setting and germ prevention. By Lisa Saunders

Anything But a Dog! The perfect pet for a girl with congenital CMV

Anything But a Dog! The perfect pet for a girl with congenital CMV
By Lisa Saunders

Japan Translates U.S. CMV Mom's Book

Japan Translates U.S. CMV Mom's Book
Elizabeth and the Miracle Dog Riley

Fairytale by grandfather inspired by death of child from cCMV

Fairytale by grandfather inspired by death of child from cCMV
Available as free e-book or in softcover from Amazon.

Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus

Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus
By Lisa Saunders

Costs of cCMV

  • Health Care Costs of cCMV, Grosse,(CDC)2018
  • Newborn Screening for CMV Found Cost Effective(Faster dx, treatment may lead to less severe hearing loss), Walker, 2016
  • Cost-effectiveness of Universal and Targeted Newborn Screening for Congenital Cytomegalovirus Infection, Gantt, 2016
  • Commentary: "Cost‐effectiveness of universal and targeted newborn screening for congenital cytomegalovirus infection," Hilditch, 2018
  • Societal costs of severe hearing loss, Mohr, 2000
  • Cochlear Implant Costs, 2020
  • Health Care Costs, Modlin, 2004
  • (Fee to read): Making dollars and sense out of a screening programme, Griffiths, 2017

Connecticut Governor Passes CMV Bill

Connecticut Governor Passes CMV Bill
Lisa Saunders with CT Governor Malloy at CMV bill signing in 2015

Face of Congenital CMV

Face of Congenital CMV
Elizabeth on last family vacation with big sister. Elizabeth died 2006 at 16 during cCMV-related seizure.

Childcare Providers Against CMV

  • Mission of Childcare Providers Against CMV
  • About Lisa Saunders, Founder, Childcare Providers Against CMV
  • Lisa's CMV in Childcare presentation
  • CT Childcare Providers Against CMV
  • CT DPH FLYER and Web contenct
  • Teaching Tool Kit for Childcare Centers and Families
  • Clinical Advisor: CT CMV Law
  • Newborn Screening for CMV Found Cost Effective Interview for MedPage by Dr Sanjay Gupta "Gupta Guide"
  • Cost Effectiveness of Newborn Screening
  • Why Universal Newborn Screening
  • CMV Study Recruits Pregnant Women
  • Lisa's CMV CT PowerPoint
  • One Page cCMV Fact Sheet plus Bibliography by Lisa Saunders
  • Chart of cCMV compared to other causes of disabilities
  • CDC's flyer: What Women Should Know About Cytomegalovirus (CMV)
  • CT's HB5147 (2014) webpage
  • CT's Most Recent HB5147 Text (2014)
  • CMV Contacts for Connecticut, Utah and U.S.
  • Passed bill: Utah’s H.B. 81
  • From Lisa to CT Politicians
Most babies born with Cytomegalovirus will be healthy. One in five will have long-term health problems like hearing loss. Learn more at www.cdc.gov/cmv

Free Downloadable Teaching Kit

  • FREE Teaching Tool Kit
  • FREE PDF Once Upon a Placemat
  • Video for children
  • Placemats for coloring
  • Story behind Once Upon a Placemat

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  • Anything But a Dog! The perfect pet for a girl with CMV (cytomegalovirus)
  • Read Excerpt of Anything But a Dog!: "LOOK INSIDE"

About Congenital CMV

  • Cornell University Features CMV
  • Fox CT: New law in Connecticut to fight number one viral cause of birth defects
  • Mystic Mom 'Overwhelmed' by Governor Signing Law on ‘Stealth Virus’ That Can Catch Pregnant Women Unaware
  • New Cytomegalovirus (CMV) Law in Connecticut
  • Birth Defect Prevention Month
  • CT Magazine June 2015
  • Fox CT: Moms Fight for CMV Law
  • News 8 at CT Capitol RE: CMV
  • Connecticut Magazine blog: Mystic Mom Raises Awareness of ‘Stealth Virus’ That Can Catch Pregnant Women Unaware
  • News 8: Preventing Congenital CMV During Pregnancy
  • Silent virus a rare, dangerous risk for the unborn
  • CMV Fact Sheet for Media
  • Get cCMV education bill passed in your state
  • Fox CT Dr & Mom
  • CT NOW: Mommy Minute
  • Grace Magazine features Elizabeth & cCMV
  • Utah 1st State to Mandate cCMV education
  • Current CMV Trial--need participants
  • CMV memoir--Anything But a Dog! The perfect pet for a girl with congenital CMV
  • Dr. Balch, Saunders, Barry on Health Watch
  • Study: Cytomegalovirus as an occupational risk in daycare educators
  • CDC: People who care for infants and children
  • Mystic River Press
  • Lisa on USA 9 News
  • Hartford Courant
  • Lisa's PowerPoint Presentation
  • News clip on Daycare
  • What Child Care Providers Should Know About Cytomegalovirus (CMV), California Childcare Health Program
  • Flyer: CMV in Child Care (Australia)
  • Healthy Child--Day care page
  • CDC: CMV Prevention Flyer
  • Pregnant w/CMV?
  • CDC Facts about CMV
  • Watch Lisa introduce CMV Book

Join Forces with cCMV Non-Profits

  • cCMV Foundation Experts
  • Join National cCMV Registry
  • Utah CMV Council
  • Stop CMV
  • Maddie's Mission
  • Brendan B. McGinnis Congenital CMV Foundation
  • CMV Help
  • Guiding Guardians CMV Family Advocacy Foundation
  • Utah Conf. videos and slides

CMV Media Coverage

  • New York Times: CMV Is a Greater Threat to Infants Than Zika, but Far Less Often Discussed
  • Coping with CMV (TV News)
  • Feb. is Prenatal Infection Month
  • What every pregnant woman needs to know
  • June: cCMV Awareness Month
  • Lisa's CMV Radio Interview
  • Her mission is awareness
  • FitPregnancy Report
  • CDC: Pregnant Women Don't Know about CMV
  • CMV Causes Miscarriages
  • Pediatrician's CMV Lecture
  • Elizabeth/CMV on Mommage
  • Stop CMV Rep/Fox News
  • CMV Overview by Dr.
  • OG/GYN's Warning Pregnant Women
  • Disability Magazines
  • CMV and Hearing Loss
  • 2008 CMV Registry Newsletter
  • CMV Support Group Newsletter (from UK)
  • Latest Research and Treatment
  • Treating Pregnant Women with antibodies
  • Treating Pregnant Women with oral ganciclovir
  • Washing Our Hands of the CMV Epidemic
  • CDC CMV Podcasts
  • CDC Podcasts
  • Disability Magazines

Releases/Stories by/about Lisa and CMV

  • For Parents Having Hard Time
  • Loving Christmas Girl Born w/CMV
  • My Mom's Attempt to Stop CMV
  • Soap and Water Prevent Birth Defects
  • NY Newspaper interviews Lisa and CMV Experts
  • Educate Your TV Audience on CMV
  • Homeless Dog and Disabled Girl
  • Speaker on CMV Prevention
  • About CMV Doctor

CMV Vaccine Updates

  • No licensed CMV vaccine available but research is continuing for a CMV vaccine. For clinical trials of CMV vaccine consult:

Followers

Stories of children born with congenital CMV

  • Elizabeth Saunders in Story of My Life
  • Group Poster of CMV Kids
  • Elizabeth Saunders-Short Stories
  • Updated CMV Kid Poster
  • Ava

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Congenital CMV (cytomegalovirus)

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