Tuesday, April 3, 2018

June Cytomegalovirus (CMV) Awareness Month. CMV #1 Birth Defects Virus in Childcare Centers. Moms Warn Pregnant Women of Increased Risk with New Book and Song

Attention: June is Cytomegalovirus (CMV) Awareness Month. CMV #1 Birth Defects Virus in Childcare Centers. Moms Warn Pregnant Women of Increased Risk with New Book and Song.

I am hoping the media will take advantage of the upcoming National Cytomegalovirus Awareness Month in June in order to warn women how to prevent the leading viral cause of birth defects.


Congenital (present at birth) cytomegalovirus (CMV) disables 4,000 newborns each year in the U.S, according to the Centers for Disease Control and Prevention (CDC).  Women who care for toddlers are at increased risk for contracting CMV.

CMV in childcare centers is a real problem. According to the March of Dimes, “As many as 7 in 10 children (70 percent) between 1 and 3 years of age who go to day care may have CMV. They can pass it on to their families, caretakers and other children.” Mothers of children in group care  are at increased risk for CMV (Pass et al., 1986) and most childcare providers are unaware they have an occupational risk for CMV (Joseph et al., 2006). 

I was a pregnant licensed childcare provider who didn't know about CMV until after my daughter Elizabeth was born severely disabled by congenital CMV. I helped Connecticut pass a new law effective 2016 aimed at battling CMV (that story was featured in Cornell Alumni Magazine and Connecticut Magazine).

CMV in childcare is a very "inconvenient truth" and I think many in the industry are afraid to alarm their workers. However, a few states such as Utah and Idaho and countries including Germany and Queensland, Australia have worked out a protocol to protect their childcare workers.

I have recently released the book, "Help Childcare Providers Fight CMV" and my friend, singer/songwriter Debra Lynn Alt of North Brandford, CT, is launching a new song, "Had I Known (about CMV)" at the Mystic and Noank Library, CT, on May 9 (details below in my following press release).

Other mothers across the country have gotten CMV laws passed in a few other states, but we need more media attention so women of childbearing age will know how to prevent contracting CMV in the first place. Lack of CMV awareness in the U.S. is due in part to low media coverage according to HealthNewsReview.org in "Why does CMV get so much less news coverage than Zika — despite causing far more birth defects?" (Shipman, 2018). This silence is a problem in regard to prevention, diagnosis and treatment.

Please see my following press release for more information.

Lisa Saunders
Parent representative of the Congenital Cytomegalovirus Foundation.
www.authorlisasaunders.com
PO Box 389, Mystic, CT 06355
LisaSaunders42@gmail.com


CMV: #1 BIRTH DEFECTS VIRUS IN CHILDCARE CENTERS—
MOMS WARN PREGNANT WOMEN OF INCREASED RISK

Book "Help Childcare Providers Fight CMV" by Lisa Saunders of Mystic, CT

Jessica Rachels and Rebekah Hall of “Idaho CMV Advocacy Project" distribute books to childcare centers

New song, "Had I Known (about CMV)" © 2018 DebraSong Publishing of North Branford, CT

Mystic, Conn.-- Mothers of children in group care are at increased risk for cytomegalovirus (CMV) and most childcare providers are unaware they have an occupational risk for CMV. Congenital (present at birth) CMV is the leading viral cause of birth defects.  According to the Centers for Disease Control and Prevention (CDC), congenital CMV disables 4,000 babies each year in the U.S. The March of Dimes states: “As many as 7 in 10 children (70 percent) between 1 and 3 years of age who go to day care may have CMV. They can pass it on to their families, caretakers and other children.”  

Lisa Saunders of Mystic, Connecticut, instrumental in the passages of the 2016 CMV law in Connecticut, just published the book, "Help Childcare Providers Fight CMV," to help educate women who care for children on how to reduce their chances of contracting CMV. Saunders was a licensed childcare provider unaware of her increased risk for CMV until after her daughter Elizabeth was born severely disabled by it in 1989. "Most pregnant women know to avoid dirty kitty litter and mosquito bites to protect their unborn babies from disabilities caused by infections," says Saunders, "but very few know how to prevent CMV, which causes more disabilities than Zika or fetal alcohol syndrome." 

Jessica Rachels of Sandpoint, Idaho, was another childcare provider uninformed of her increased risk for CMV.  Jessica’s daughter, Natalie was born disabled by congenital CMV in 2006.  Rachels is including the book in her outreach efforts (see Fundraiser Sets Sights on CMV Awareness, Malone, 2018).  

The stories of childcare providers Jessica Rachels and Lisa Saunders are told in the first chapter of Help Childcare Providers Fight CMV. For those who don't have time to read the book, moms-to-be can learn about CMV just by clicking on the "Look inside" feature on Amazon and advancing to the Acknowledgements page where they will find the facts:

  • Caregivers of young children are at increased risk for CMV, the leading birth defects virus that disables 4,000 babies each year in the U.S. (CDC).
  • Mothers of children in group care are at increased risk for CMV (Pass et al., 1986).
  • 44 - 100% of two-year-olds in group daycare are excreting CMV (Pass et al., 1986).
  • 8 - 20% of childcare providers contract CMV infection every year (AAP et al., 2011) VERSUS 1-4% in general population (CDC).   
  • Diaper wipes do not kill CMV (Stowella et al., 2014 ).
  • “Women may be able to lessen their risk of getting CMV by reducing contact with saliva and urine from babies and young children. Some ways to do this are: kissing children on the cheek or head rather than the lips, and washing hands after changing diapers. These cannot eliminate your risk of getting CMV, but may lessen your chances of getting it” states the CDC. Download this flyer from the CDC: https://www.cdc.gov/cmv/downloads/pregnant-patients-cmv.pdfhttps://ci6.googleusercontent.com/proxy/RnNZfQn2o2xpggJQqefCOervMbPIci5mujDPJnvl43kv6Rtxjyh5gHN_JKVzeU-aaGz3pePFgxfoAAtZJZNx8mveVTc-11j98EfuAJVcumUenA=s0-d-e1-ft#https://ssl.gstatic.com/ui/v1/icons/mail/images/cleardot.gif

Help Childcare Providers Fight CMV is dedicated to mothers who find out  too late about CMV and includes the lyrics to the new song, "Had I Known (about CMV)" © 2018 DebraSong Publishing. Debra Lynn Alt of North Branford, Connecticut, performed the song for the first time on the Lisa Saunders Show in March 2018. Alt, a former lead singer for the Rolling Stone Magazine House Band writes songs for causes and books that celebrate life—no matter where the journey leads (debralynnalt.com). Alt will launch her new song "Had I Known (about CMV)", and Saunders her new book, "Help Childcare Providers Fight CMV," in Mystic, Connecticut, on May 9, 2018:

Wednesday, May 9, 3:30 p.m.
"Had I Known (about CMV)": Song and Book Launch
Mystic and Noank Library, 40 Library Street, Mystic, CT 06355
Free and open to the public.
Debra Lynn Alt, a former lead singer for the Rolling Stone Magazine House Band, will perform her new song, "Had I Known (about CMV)." The song conveys how a mother feels when she learns her newborn's disabilities might have been prevented had she known about CMV (cytomegalovirus), the leading viral cause of birth defects--a much greater threat to newborns than Zika. Lisa Saunders, author of  "Help Childcare Providers Fight CMV" will introduce her  new book and discuss how she helped Connecticut become the second state to pass a law aimed at battling CMV.
Light refreshments served. More info about CMV: cdc.gov/cmv.
Visit Debra Lynn Alt at: debralynnalt.comdebrasong@gmail.com
Lisa Saunders at: authorlisasaunders.com or congenitalcmv.blogspot.com

###

About Lisa Saunders: Lisa Saunders, a former licensed childcare provider and graduate of Cornell University, was instrumental in helping Connecticut pass a CMV testing law in 2015. She is founder of the Help Childcare Providers Fight CMV Project and the parent representative of the Congenital Cytomegalovirus Foundation. She is the content coordinator for the magazine, Groton-Mystic Neighbors, author of 10 books, and a part-time history interpreter at Mystic Seaport. An SEC-TV talk show host, Lisa lives with her husband, Jim, in Mystic, Connecticut.  Lisa writes extensively about congenital CMV in her books and through articles such as "The Danger of Spreading CMV: How We Can Protect Our Children" (ChildCare Aware of America, 2017) and “Help Childcare Providers Fight CMV” (National CMV Foundation, 2018) . Visit Lisa at www.authorlisasaunders.com or congenitalcmv.blogspot.com.
Lisa's CMV-related books include:
  1. Anything But a Dog! The perfect pet for a girl with congenital CMV 
  2. Surviving Loss: The Woodcutter’s Tale
  3. Once Upon a Placemat: A Table Setting Tale 
  4. Help Childcare Providers Fight CMV
Saunders has a PowerPoint to Help Childcare Providers Fight CMV, which is based on her new book, "Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus." You can access the following elements of her PowerPoint:
a. Slides
b. Handouts
c. YouTube Presentation by Lisa Saunders

People can click here for the free 133-page pdf manuscript. To share the book with others, purchase the bound paperback for $6.13 on Amazon by clicking here.

More info about coloring book, Once Upon a Placemat: A Table Setting Tale
Fun teaching toolkit for students and families: Fairytale tells how to “Share a Meal, Not the Germs.” Once Upon a Placemat: A Table Setting Tale is by Lisa Saunders and Jackie Tortora. Click for here for free pdf version or purchased the bound coloring book to hand out on Amazon for $5.38). Toolkit includes:

About Singer/Songwriter Debra Lynn Alt:
Debra Lynn Alt, a former lead singer for the Rolling Stone Magazine House Band, lives in North Branford, Connecticut, and writes songs for causes and books that celebrate life—no matter where the journey leads. To hear Debra's music or read her work, visit her at debrasong.com or contact her at: debralynnalt.com.

Connecticut's CMV Resources since 2016 CMV Law:
Connecticut Department of Public Health(CT DPH) website has flyers and information: http://portal.ct.gov/DPH/Family-Health/EHDI/CMV. The National CMV Foundation allowed the CT DPH to embed their logo in their “Are You Pregnant” National CMV Awareness Flyer.

More information about Congenital CMV: 
Congenital CMV Disease Research, Clinic & Registry
Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, CMV Registry, CMV Research and CMV Clinic. The CMV Registry supports CMV research, disseminates information and provides parent support. Visit: https://www.bcm.edu/departments/pediatrics/sections-divisions-centers/cmvregistry and Dr. Demmler-Harrison’s blog at: http://www.texaschildrensblog.org/author/gdemmler/
Contact: cmv@bcm.edu. Information available in Spanish.

About the "Help Childcare Providers Fight CMV" Project:
The mission of the Help Childcare Providers Fight CMV project is to educate U.S. women who care for toddlers on how to reduce the spread of CMV to protect their pregnancies until the medical community makes doing so a “standard of care,” the U.S. government passes a law requiring CMV education, or an effective vaccine becomes available. The Help Childcare Providers Fight CMV project wishes to disseminate materials to daycare directors, families, and policy makers. CMV prevention education is accomplished through workshops, public service announcements, health fairs, books, and writing articles such as, "The Danger of Spreading CMV: How We Can Protect Our Children" published by ChildCare Aware of America (2017).

About The Idaho CMV Advocacy Project:
In 2017, Jessica Rachels, along with another mother,  Rebekah Hall, formed the “Idaho CMV Advocacy Project." Together with Rachel's husband, Patrick Rachels, the group got a new law passed in Idaho requiring its Department of Health and Welfare to provide information on cytomegalovirus “to the public, particularly pregnant women and women who may become pregnant” (see CMV education bill signed by Governor Otter).  June has now also been declared as Idaho's CMV Awareness Month to coincide with National Cytomegalovirus Awareness Month. In honor of Idaho's newly declared awareness month, Rachels and Hall plan to distribute CMV educational materials to childcare centers and Early Head Start programs. Depending on funds available, the women hope to give "Help Childcare Providers Fight CMV" to directors and/or the educational coloring book, "Once Upon a Placemat--A Table Setting Tale," also by Saunders, to staff members so they and their students will learn how to set the table and share a meal, not the germs (see Fundraiser Sets Sights on CMV Awareness, Malone, 2018).  The Idaho CMV Advocacy Project is dedicated to educating Idaho women and families about the risks of Cytomegalovirus (CMV) during pregnancy and prevention strategies. https://idahocmv.com. (For more information, or to help the Idaho CMV Advocacy Project, contact Jessica Rachels and  Rebekah Hall at  Idahocmv@gmail.com).


MEDIA COVERAGE OF LISA’S CMV WORK


Thursday, March 8, 2018

Presentation: Help Childcare Providers Fight CMV--Protect Newborns from ...



Click on the play button and then on the bottom right of your screen, click on "YouTube" to watch it as a larger screen on YouTube. Here is the link to it: https://youtu.be/dDkICFULA7M

This presentation by Lisa Saunders is based on the new book, "Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus" available on Amazon: https://www.amazon.com/Help-Childcare... Handouts for this presentation: https://drive.google.com/file/d/0B9Kl... Slides: Slides:https://drive.google.com/file/d/1NmH8... More Information: Centers for Disease Control and Prevention: https://www.cdc.gov/cmv/index.html Facebook: https://www.facebook.com/CMVinChildCare/ Blog: https://congenitalcmv.blogspot.com/ Contact: LisaSaunders42@gmail.com

Wednesday, February 21, 2018

Childcare Providers: FREE Tool Kit to Fight CMV, #1 Birth Defects Virus



by
Lisa Saunders

New book includes many links to free resources

(FREE CMV resource links, including the pdf manuscript of this book, are below this intro):

I'm a former licensed childcare provider who, like many across the U.S., never heard of my occupational risk for CMV, the #1 birth defects virus. To save time after changing diapers, many childcare providers use diaper wipes to remove urine from hands and surfaces, but diaper wipes do not kill CMV.  

The March of Dimes states, “As many as 7 in 10 children (70 percent) between 1 and 3 years of age who go to day care may have CMV. They can pass it on to their families, caretakers and other children.” 

Every year, 8 - 20% of caregivers/teachers contract CMV, which is understandable given that approximately 44 - 100% of two-year-olds in group daycare are excreting CMV (Pass et al., 1986). 

In a recent survey, only 18.5% of licensed “in-home” daycare providers have heard of CMV  (Thackeray et al., 2016). CMV in childcare is a very "inconvenient truth" and many in the industry are afraid to alarm their workers. However, a few states such as Utah and countries including Germany and Queensland, Australia, have worked out a protocol to protect their childcare workers.

It is a worker’s right to know occupational hazards, yet very few childcare providers have been counseled about CMV in accordance with the recommendations made by the American Academy of Pediatrics in the book, Caring For Our Children, which states, "child care staff members should be counseled about risks. This counseling may include testing for serum antibody to CMV to determine the child care provider's protection against primary CMV infection..."  

To protect the unborn children of childcare providers and those who use their services, I published the book, Help Childcare Providers Fight CMV. People can contact me at LisaSaunders42[at]gmail.com if they would like a FREE 133-page pdf version of it, or they can purchase the bound paperback for $6.99 on Amazon for distribution to those who care for children. 

The book is dedicated to mothers who find out too late about CMV and includes the lyrics to the new song, "Had I Known," by Debra Lynn Alt of North Branford, Connecticut. The heartfelt lyrics convey how a mother feels when she learns she could have reduced her chances of contracting CMV and spared her baby from the effects of congenital CMV.  

Help Childcare Providers Fight CMV begins with the story of four childcare providers unaware of CMV until it was too late (click first chapter, Had I Known, for excerpt), and continues with why the public is largely unaware of CMV, 15 reasons why childcare providers should be educated about CMV, what other countries are doing to protect their childcare workers, and what women who care for young children need to know to protect their unborn children. For example, the CDC states, "Women may be able to lessen their risk of getting CMV by reducing contact with saliva and urine from babies and young children. Some ways to do this are: kissing children on the cheek or head rather than the lips, and washing hands after changing diapers. These cannot eliminate a woman’s risk of catching CMV, but may lessen her chances of getting it.”

The book provides a toolkit of resources to educate childcare providers about CMV with a sample protocol and links to public health flyers such as the CDC's CMV prevention tips. It also includes my fairytale  "Once Upon a Placement: A Table Setting Tale," with "color-me-in" images to reach the whole family on how to "share a meal, not the germs!"

See below for links to flyers (English and Spanish), free pdfs, and more information about the "Help Childcare Providers Fight CMV" project.
Sincerely,

Lisa Saunders
Congenitalcmv.blogspot.com
Founder, "Help Childcare Providers Fight CMV" Project
Parent rep, Congenital Cytomegalovirus Foundation

FREE CMV Prevention Resources

1. “Staff Education and Policies on Cytomegalovirus (CMV)," American Academy of Pediatrics (AAP) et al., Caring for Our Children: http://cfoc.nrckids.org/StandardView/7.7.1.1.


3. National CMV Foundation features several types of CMV flyers for downloading and hanging on your wall: https://www.nationalcmv.org/resources/educational-downloads.aspx

4. Flyer Geared to Women Who Care for Toddlers: Created by the "Help Childcare Providers Fight CMV" Project: 

5. CDC’s CMV info available in English and Spanish:
Español: Acerca del citomegalovirus: https://www.cdc.gov/cmv/overview-sp.html



c. YouTube Presentation by Lisa Saunders: https://youtu.be/dDkICFULA7M
 You will also find this and several other links to free resources from across the U.S. at: https://congenitalcmv.blogspot.com/2018/02/free-resources-to-help-childcare.html

7. Check your state’s childcare care licensing department, department of health, department of labor, and local universities with occupational medicine and public health programs. CMV is a bloodborne Pathogen. See Occupational Safety and Health Administration (OSHA) for bloodborne pathogens: https://www.osha.gov/OshDoc/data_BloodborneFacts/bbfact01.pdf


8. Handwashing: Centers for Disease Control and Prevention (CDC) has a video and posters on handwashing procedures and what to do if soap and water are not available: https://www.cdc.gov/handwashing/index.html

9. MotherToBaby.org provides factsheet on CMV and mentions childcare workers: https://mothertobaby.org/fact-sheets/cytomegalovirus-cmv-pregnancy/pdf/


11. "The Danger of Spreading CMV: How We Can Protect Our Children" by Lisa Saunders published by ChildCare Aware of America (June 2017).

12. Utah created English/Spanish brochures specifically for childcare providers:

13. Connecticut Department of Public Health (CT DPH) website has flyers and information: http://portal.ct.gov/DPH/Family-Health/EHDI/CMV. The National CMV Foundation allowed the CT DPH to embed their logo in their “Are You Pregnant” National CMV Awareness Flyer.

For social media, a photo of the flyer will be easier to share. Find the jpeg of “Are You Pregnant” by the National CMV Foundation at:
https://drive.google.com/file/d/1AVG9RXGVsbBTwOImOb18NWDdG3rHbHbm/view?usp=sharing

If you need a pdf of the above flyer with information relevant for childcare providers from CT DPH, then: https://drive.google.com/file/d/0B9Klfxar2CmjemlkcElQQkZfQWs/view)

14. Article, “Help Childcare Providers Fight CMV” by Lisa Saunders published by National CMV Foundation (March 5, 2018)


16. Fun Teaching Toolkit for Students and Families: Fairytale tells how to “Share a Meal, Not the Germs.” An educational “coloring book, Once Upon a Placemat: A Table Setting Tale by Lisa Saunders and Jackie Tortora. Free tools for presentation at: http://congenitalcmv.blogspot.com/2017/04/free-cmv-teaching-tool-once-upon.html or see the FREE Teaching Program Tool kit here, which includes: 
Educational Coloring Book: Free pdf version of Once Upon a Placemat: A Table Setting Tale (or the educational fairy tale can be purchased as a bound coloring book to hand out on Amazon for $6.99).
Placemats: Side one: Placemat with tableware characters with space for your coloring artist's name (perfect for laminating and using as a table-setting reminder): https://drive.google.com/file/d/0B9Klfxar2Cmjd21OTjB6SjNfYVU/view
Side two: Germ prevention tips and hand-washing instructions.
Hand washing flyer for above sinks

17. NAEYC: National Association for the Education of Young Children and its "Early Childhood Program Standards and Accreditation Criteria and Guidance for Assessment (10.D.01, p.91)" includes: "a. steps to reduce occupational hazards such as infectious diseases (e.g., exposure of pregnant staff to CMV [cytomegalovirus], chicken pox)..." Find their accredited childcare centers/preschools


19. States providing CMV Resources about the "Help Childcare Providers Fight CMV" Project are listed below.

Note: These CMV-related paperback books by Lisa Saunders are not free, but are available on Amazon:


  1. Anything But a Dog! The perfect pet for a girl with congenital CMV 
  2. Surviving Loss: The Woodcutter’s Tale
  3. Once Upon a Placemat: A Table Setting Tale 
  4. Help Childcare Providers Fight CMV
Japan: Elizabeth and Riley the Miracle Dog (Japanese translation of Anything But a Dog! The perfect pet for a girl with congenital CMV). (S. Nakai, Trans.) Tokoyo: Thousands of Books Japan. Retrieved from http://shop.thousandsofbooks.jp/items/5173204



"Help Childcare Providers Fight CMV" Project:

The mission of the Help Childcare Providers Fight CMV project is to educate U.S. women who care for toddlers on how to reduce the spread of CMV to protect their pregnancies until the medical community makes doing so a “standard of care,” the U.S. government passes a law requiring CMV education, or an effective vaccine becomes available.

The Help Childcare Providers Fight CMV project disseminates materials to daycare directors, families, and policy makers. CMV prevention education is accomplished through workshops, public service announcements, health fairs, books, and writing articles such as, "The Danger of Spreading CMV: How We Can Protect Our Children" published by ChildCare Aware of America (2017).

WHAT YOU CAN DO TO HELP
RESULTS SO FAR
2015 - 2017:  
  • Connecticut became the second state in U.S. to require CMV testing when an infant fails the hearing test. 
  • The MotherToBaby.org Education Committee updated their CMV fact sheet to add a question specific to occupational exposure.
  • Henry the Hand Foundation ran a CMV prevention campaign during April’s National Public Health Week.
  • Child Care Aware published article on CMV prevention 
  • Connecticut Office of Early Childhood’s Division of Licensing for Child Care Providers/Operators now includes “Congenital Cytomegalovirus” under “Disease and Prevention” on its website, though my goal is for CMV prevention to be included in the required training for licensing.
  • Interviewed health and wellness experts about CMV on “The Lisa Saunders Show” (SEC-TV, channel 12 and YouTube).
  • Coordinating the planning and delivery of CMV information through press releases, newsletters, Facebook: CMV in Child Care and Congenital CMV News; educational campaigns through workshops, televised public service announcements, health fairs; and creating behavior change programs such as “Share a Meal, Not the Germs!” and “Keep Your Cups to Yourself."


STATE CMV MATERIALS


THE COST OF NOT PROVIDING CMV PREVENTION EDUCATION: Children disabled by congenital CMV are estimated to cost the U.S. healthcare system, $1.86 billion annually at $300,000/year each. (Modlin et al., 2004).

STATES

Check your state’s childcare care licensing department, department of health, local universities with occupational medicine and public health programs. 


ARIZONA


In 2015, Arizona saw 38,886 births. Assuming 1 out 750 (.001) are born permanently disabled by CMV, then you have 38,886 x .001= 38.88 or 39 babies born disabled by cCMV in Arizona each year. Estimated at costing the U.S. healthcare system $300,000 per child per year means that your state is spending $11,665,800 annually in medical costs. Since prevention education studies show greater than 75% effectiveness, that is a lot of money being spent on preventable medical expenses. 



CONNECTICUT

1.     Connecticut Department of Public Health (DPH) website,  Congenital Cytomegalovirus (CMV): http://portal.ct.gov/dph/Family-Health/EHDI/Home-page--Early-Hearing-Detection-and-Intervention-Program-Home-Page%20

2.     CT DPH and National CMV Foundation flyer: Are You Pregnant?  http://www.ct.gov/dph/lib/dph/ehdi/ncmvf_awareness_flyer_ct_dph.pdf

4.     Flyer FOR OBSTETRIC HEALTH CARE PROVIDERS: http://www.ct.gov/dph/lib/dph/ehdi/about_cmv_obs.pdf

5.     Flyer: TESTING FOR OBSTETRIC HEALTH CARE PROVIDERS: http://www.ct.gov/dph/lib/dph/ehdi/cmv_testing_info_obs.pdf

In 2015, Connecticut’s annual cost to the healthcare system of caring for children disabled by congenital CMV can be calculated at 35,746 total births x .001 congenital CMVdisabled = 36 disabled babies X $300,000/year  = $10,800,000 annually.


Connecticut requires each newborn that fails the newborn hearing screening to be tested for congenital CMV.

    Although prevention education didn't pass in Connecticut because of funds, the Connecticut Department of Public Health now provides the following information and flyers:

    This flyer includes info for childcare providers from CT DPH on back: https://drive.google.com/file/d/0B9Klfxar2CmjemlkcElQQkZfQWs/view

    According to my calculations, providing prevention education could annually save several million dollars in the State of Connecticut alone.  Children disabled by congenital CMV are estimated to cost the U.S. healthcare system, $1.86 billion annually at $300,000/year each. (Modlin et al., 2004).


    Connecticut Organizations that care:
    CT Child Care Association and Educational Playcare, http://www.ctcca.org/
    Gerry Pastor, Gerry@educationalplaycare.co
    Eda diBiccari, Child Care Union
    CSEA SEIU Local 2001

    HAWAII
     Hawaiirequires the state to educate the public and professionals about congenital CMV

    Idaho has legislation 

    ILLINOIS
    Illinois has legislation that requires both education and screening.

    IOWA
    Iowa has legislation that requires both education and screening.

    MAINE
    In 2017, Maine proposed universal newborn CMV screening. While the legislation did not pass, the legislature established a committee to investigate universal CMV screening to provide a recommendation to the state in 2018.

    MICHIGAN
      Michigan proposed legislation.

      Minnesota proposed legislation.

      NEW YORK

      Proposed Legislative Mandates: Education and Screening: New York 

      New York based health websites provide CMV information: 

      My work on the Connecticut CMV testing bill was featured in Cornell’s Alumni Magazine  out of Ithaca, NY.

      Legislation (2017-2018): 
      https://www.nysenate.gov/legislation/bills/2017/s2816/amendment/original#yes

      New York Organizations that care:
      Unions
      CSEA in Albany, AFCME, 518-257-1000
      Tammie Miller, Chapter Chair
       UFT Family Child Care Providers
      Email: tmiller@uft.org

      OREGON
      Oregon has legislation that requires both education and screening.

      PENNSYLVANIA

      Pennsylvania Proposed Legislative Mandates

      TENNESSEE

      Tennessee requires healthcare providers to educate women of childbearing age.

      TEXAS

      Texas has legislation. Texas Medical Association asks, “Have you talked with your pregnant patients about congenital CMV?” See its downloadable fact sheet

      UTAH

      Utah has legislation that requires both education and screening.


      About Lisa Saunders


      Lisa Saunders, a former licensed childcare provider and graduate of Cornell University, wrote "Help Childcare Providers Fight CMV" because she didn't find out about CMV until after her daughter Elizabeth was born severely disabled by congenital (present at birth) CMV. She was also the mother of a toddler and didn't know the precautions to take when handling bodily fluids such as saliva. Since the death of Elizabeth during a seizure in 2006 at the age of 16, Lisa has been raising CMV awareness through writing, speaking, helping Connecticut pass a CMV testing law in 2015, and working to ensure all childcare providers learn of their occupational risk for CMV. Lisa is the author of several books including her memoir, “Anything But a Dog! The perfect pet for a girl with congenital CMV,” and the article, "The Danger of Spreading CMV: How We Can Protect Our Children," published by ChildCare Aware of America (2017). 

      CMV books by Lisa Saunders include:




      1. Anything But a Dog! The perfect pet for a girl with congenital CMV (Unlimited Publishing 2008, Japan, 2017). Memoir.
      2. Surviving Loss: The Woodcutter’s Tale. Fairytale about losing a child to an illness and how to find a way to move forward.
      3. Once Upon a Placemat: A Table Setting Tale (2016). "Grandma" uses Miss Cup to teach germ prevention and Mr. Knife's fear the dish will run away with the spoon to teach table-setting.
      4. Help Childcare Providers Fight CMV: Protect Newborns from #1 Birth Defects Virus (2018)