Saturday, November 19, 2016

Lisa Saunders, CMV Awareness and Policy Advocate


Lisa Saunders
CMV Awareness and Policy Advocate 

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Lisa Saunders provides presentations and educational materials for the whole family to stop the spread of cytomegalovirus (CMV)--a far bigger threat to the unborn than Zika. She lectures on CMV for organizations such as the Centers for Disease Control and Prevention, Society of Maternal Fetal Medicine, Maternal and Child Health Coalition, Infection Control Nurses of Connecticut, and Siemens Healthcare Diagnostics.

Lisa interviews health and wellness experts on the Lisa Saunders TV Talk Show (SEC-TV, channel 12), which is also uploaded to YouTube.



Lisa can present on the following topics: 
  1. What Caregivers and Pregnant Women Need to Know About CMV
  2. My Story and CMV (includes research
  3. Connecticut and Congenital CMV
  4. How a Parent Can Raise a CMV Prevention Message (including how to get a law passed)
Her work on Connecticut's new CMV law was featured in Cornell Alumni and Connecticut magazines and by the Daughters of the American Revolution.

Lisa writes extensively about congenital CMV for her Congenital CMV blog, press releases, newsletters, and articles, such as "The Danger of Spreading CMV: How We Can Protect Our Children" (ChildCare Aware of America, 2017). She manages the Facebook pages, CMV in Child Care and Congenital CMV News and created a one-page CMV fact sheet for policy makers. Her bibliography with links to sources can be accessed here.

LISA'S CMV AWARENESS & PREVENTION BOOKS
  1. CMV prevention "color-me-in" Fairytale, Once Upon a Placemat: A Table Setting Tale.
  2. Memoir: Anything But a Dog! The perfect pet for a girl with congenital CMV (Unlimited Publishing 2008, Japan, 2017)
  3. Fairytale about losing a child to illness and finding a way to move forward:Surviving Loss: The Woodcutter’s Tale.

CMV PRESENTATIONS AND CONTACTS INCLUDE: 


CMV PRESENTATIONS

Society of Maternal Fetal Medicine, Las Vegas, NV (January 26, 2017)
"Congenital CMV and Research" – Caesars Palace. www.smfm.org/meetings/2-37th-annual-pregnancy-meeting. Contact: Sabine Bousleiman M.S.N,M.S.PH, Program Director, Columbia University, OBGYN Department, (212) 305-4348, (917) 673-7790, sb1080@cumc.columbia.edu.
See study: https://clinicaltrials.gov/ct2/show/NCT01376778

Maternal and Child Health (MCH) Coalition, Hamden, CT (December 13, 2016)
Women's Consortium: www.womensconsortium.org. Contact Marijane Carey, mjcarey95@aol.com

Congenital CMV Public Health & Policy Conference, Austin, TX (September 27, 2016)
As One Door Closed, Another Door Opened: CT Congenital CMV Initiative”, co-presented with  Brenda Kinsella Balch, MD, CT pediatrician and Chapter Champion for the American Academy of Pediatrics Early Hearing Detection and Intervention Program, bkbalch@sbcglobal.net. http://cmvconference.org/.  

Connecticut and Congenital CMV. www.cga.ct.gov/med/default.asp. Richard Eighme, Medical Assistance Program Oversight Council, (860) 240-0321, Richard.eighme@cga.ct.gov, or Rep. Susan Johnson, Johnson@cga.ct.gov

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 20, 2015)
Public Testimony for H.B. 5525: “AN ACT CONCERNING CYTOMEGALOVIRUS”

CMV Public Health & Policy Conference, Salt Lake City, UT (September 26, 2014)
How a Parent Can Raise a CMV Prevention Message”. www.cmvconference.org/archive/cmv2014/index.html. Contact: Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, Congenital CMV Disease Research, Clinic & Registry, 832-824-4330, gjdemmle@texaschildrens.org

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 28, 2014)
Public Testimony for H.B. 5147: “AN ACT CONCERNING NEWBORN SCREENING FOR CYTOMEGALOVIRUS AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR CYTOMEGALOVIRUS.”

Infection Control Nurses of Connecticut Annual Spring Seminar, Plantsville, CT (April 2013)
“CMV: Threat to immunocompromised persons” - Aqua Turf Club. http://infectioncontrolct.org/.
Contact Kris Magnussen, Communicable Disease Prevention Supervisor, KMagnussen@llhd.org

CMV 2012 Conference, San Francisco, CA (October 29-November 2, 2012)
“Raising CMV Awareness by Writing” - Conference Mission Bay Conference Centre. www.congenitalcmv.org. Contact Lenore Pereira, Ph.D., Founder of Congenital Cytomegalovirus Foundation, and Professor, Cell and Tissue Biology Department, University of California San Francisco, lenore.pereira@ucsf.edu

Siemens Healthcare Diagnostics, Tarrytown, NY (2010)
“Living With Congenital CMV” (webinar). https://usa.healthcare.siemens.com. Katherine Soreng, Ph.D., Director, Clinical and Scientific Marketing, katherine.soreng@siemens.com; Louise Loughran, louise.loughran@siemens.com

Maternal-Infant Services Network, Orange, Sullivan and Ulster Counties, NY (March 20, 2009)
“Pregnant Women Need to Know about CMV” - Perinatal Update 2009. www.misn-ny.org. Contact:
Stephanie Sosnowski, BS, ICCE, CLC, Director of Community Health and Wellness, ssosnowski@misn-ny.org

State University of New York at Rockland, Suffern, NY (December 2, 2008)
“Tragic Kiss: Stop the Spread of CMV” – Organized by a nursing professor. 

Centers for Disease Control and Prevention (CDC), Atlanta, GA (November 5-7, 2008)
“Congenital CMV: My Daughter’s Life and Death” - First International Congenital CMV Conference held in the U.S. See: http://congenitalcmv.blogspot.com/2008/11/cdc-congenital-cmv-cytomegalovirus-and.html. Contact Michael Cannon, Ph.D. mrc7@cdc.gov, a research epidemiologist at the CDC.

Johns Hopkins University, Baltimore, MD (Fall 1995)
Raising my handicapped daughter” - Guest speaker to a graduate class of special education teachers, therapists, and social workers.  Contact Mary Goodin, M. Ed., OTR, Ssagoodin@cs.com

I also present CMV awareness to local groups such as:
The Woman’s City Club of Norwich, Norwich, CT (2015)
“How a Mother Raised Awareness of CMV and Got Connecticut to Pass a Bill.” Otis Library.
Contact Eileen Nagel, eileen.nagel@snet.net

Westerly Registered Nurse’s Club, Westerly, RI (April 22, 2014)
“Supporting a Connecticut CMV Bill,” Mermaid Café. Contact: Ida Manzella, imanzella@comcast.net

COMMENDATIONS

ARTICLES & TV INTERVIEWS THAT INCLUDE MY COMMENTS OR CMV WORK



MY BOOKS, VIDEOS, AND OTHER RESOURCE MATERIALS
  1. Coloring book: Once Upon a Placemat: A Table Setting Tale - CMV prevention tips from “Miss Cup” (2016). Fun, Free Teaching Toolkit for Students and Their Families:
"Grandma" uses Miss Cup to enforce germ prevention and uses Mr. Knife's fear that the dish will run away with the spoon to teach table-setting in the educational coloring book, "Once Upon a Placemat: A Table Setting Tale." FREE Teaching Toolkit includes:
  1. Music/image video about my daughter’s life: Girl with congenital cytomegalovirus (CMV)
  2. Memoir: Anything But a Dog! The perfect pet for a girl with CMV (Unlimited Publishing, 2008, Thousand Books, Japan, 2017)
  3. Booklet: Surviving Loss: The Woodcutter’s Tale: Fairytale about losing a child plus moving forward (2013)
  4. Mystic Seafarer's Trail: Misadventures trying to get thin and famous so people will hear about CMV (2012)

MY ARTICLES, TESTIMONIES, PRESENTATIONS

PROFESSIONAL EXPERIENCE

INDEPENDENT WRITING/MARKETING CONSULTANT, Nov. 2010 – Present
New England/New York media and networking consultant.  Write press releases, biographies, and marketing materials for clients that include:
  • National Field Service Corporation
  • Act II Publications
  • Connie Howard Music

MYSTIC SEAPORT, Mystic, CT, 2010 – Present (part-time)
Historical Interpreter: Orally present maritime history and artifacts to the general public.

STATE UNIVERSITY OF NEW YORK AT ROCKLAND, Suffern, NY, 2006 – 2010
Campus Communications Assistant
  • Promoted events and programs to the media, authoring press releases, which resulted in newspaper coverage of the college and faculty. Wrote the alumni newsletter, SCENE, with quarterly circulation of 35,000. Used Twitter, Facebook, and RCC Speakers Bureau as additional promotional tools.
Key Accomplishments
  • Awarded by the National Council for Marketing & Public Relations, District I: “Gold Medallion” for Academic Convocation Booklet (2010); Silver for Departmental Brochures (2010); and Bronze for ad print series, which featured noteworthy alumni (2009). 
  • Received national coverage on Fox and Friends and in Associated Press through press releases relating the circumstances of individual students or faculty to current events.

NATIONAL FIELD SERVICE CORPORATION, Suffern, NY, 1998 – 2008 (presently consulting)
Recruiter / Marketing Specialist for consulting company
Interviewed approximately 80 candidates monthly and communicated with clients on employment needs in the utility, communications, and right-of-way industries. Represented company at job fairs and coordinated marketing events, including annual 100-guest Christmas party and sleepover event at West Point Academy. Placed many applicants with AT&T. Maintained database of applicants in People Trak.

LICENSED HOME DAY CARE PROVIDER, Rockville, MD, 1987-1993
Provided in-home care and educational programs for up to six children.







Ceremonial bill signing for Public Act 15-10: An Act Concerning Cytomegalovirus at the Office of Governor Dannel P. Malloy on 7/28/15. L to R: Jane Baird, Government Relations, Connecticut Children's Medical Center; Dr. Wallis Molchen, Chief Resident, Connecticut Children’s Medical Center; Jane Brancifort, Deputy Commissioner, Connecticut Department of Public Health ; John Hampton For State Representative; Dr. Brenda K. Balch, American Academy of Pediatrics EHDI (Early Hearing Detection and Intervention)Chapter Champion; Office of Lt. Governor Nancy WymanLisa Saunders, Author/TV Host; parent representative, Congenital Cytomegalovirus Foundation, holding photo of daughter Elizabeth of Anything But a Dog - Girl with congenital CMV - cytomegalovirus ; State Representative Kevin Ryan; Governor Dannel P. Malloy; Cathy Osten for the 19th District State Senator; Ken Hiscoe, Pfizer, Government Relations; Jarred and his mother, Melvette Ruffin; DeVaughn Ward, Liaison, Department of Public Health; and Kinson Perry, lobbyist at Rome, Smith & Lutz.
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NOTE FROM LISA SAUNDERS


“Wash Away CMV: Protect Your Pregnancy”


I am Lisa Saunders, the mother of Elizabeth, born severely disabled by congenital cytomegalovirus (CMV). My mission is to prevent Elizabeth’s suffering from happening to other children. According to the New York Times in 2016, CMV Is a Greater Threat to Infants Than Zika, but Far Less Often Discussed.

Most pregnant women know to avoid dirty kitty litter and mosquito bites to protect their unborn babies from disabilities caused by infections.  Very few, however, know how to prevent the leading viral cause of birth defects, congenital (present at birth) CMV. Congenital CMV is a more common cause of disabilities than fetal alcohol syndrome and spina bifida. Of the four million infants born each year in the U.S., approximately 1% are infected prenatally with CMV (American Academy of Pediatrics et al., Caring for Our Children, 2011).  Ten percent of those infants, about 4,000 babies each year, are born with one or multiple abnormalities, which can include hearing and vision loss; intellectual challenges; cerebral palsy; and seizures.

CMV is often found in the bodily fluids of otherwise healthy toddlers. Toddlers can spread the disease to other toddlers by mouthing each other’s toys and to their adult caregivers unaware of the properly handling bodily fluids such as saliva and urine. Unfortunately, most women of childbearing age don’t know about CMV and don’t realize they should avoid kissing toddlers around the mouth or sharing cups and utensils with them.

When I was pregnant with Elizabeth, I was operating a licensed home daycare center, volunteering in our church nursery, and was the mother of a toddler—all things that put me at higher risk for contracting CMV.

My pregnancy with Elizabeth, due to be born on Christmas Eve of 1989, had been a happy experience--until the moment she arrived on December 18th. Upon looking at her, I felt a stab of fear. My immediate thought was, “Her head looks so small—so deformed.” After a CAT scan, the neonatologist said, "Your daughter has microcephaly--her brain is very small with calcium deposits throughout. If she lives, she will never roll over, sit up, or feed herself." Further tests revealed Elizabeth's birth defects were caused by congenital cytomegalovirus (CMV).

I then given information from the Centers and Disease Control Prevention (CDC) stating that, "People who care for or work closely with young children may be at greater risk of CMV infection than other people because CMV infection is common among young children..." This information came too late to spare my daughter the years of suffering that lay ahead. Nowhere in my daycare licensing training was CMV mentioned. CMV prevention was not discussed in my prenatal doctor visits. I felt sick at what my lack of knowledge had done to my little girl. In milder cases, children with congenital CMV may lose hearing or struggle with learning disabilities. But Elizabeth's case was not a mild one.

When my husband Jim heard Elizabeth's grim prognosis, he stared at her and said, “She needs me”—just like Charlie Brown with that pathetic Christmas tree.

It took me about a year, but I eventually stopped praying that a nuclear bomb would drop on my house so I could escape my overwhelming anguish over Elizabeth's condition. Life did become good again—but it took a lot of help from family, friends, some Valium, and the Book of Psalms. Although Elizabeth was profoundly mentally impaired, legally blind, had cerebral palsy, epilepsy and a progressive hearing loss, we were eventually able to move forward as a happy, "normal" family. 


Sixteen years later, I awoke feeling so proud of Elizabeth. It was her 16th birthday and just one week before her 17th Christmas. When the song “I’ll be home for Christmas” played on the radio, I cried thinking how hard Elizabeth fought to be home with us, overcoming several battles with pneumonia, major surgeries, and seizures. Weighing only 50 pounds, she looked funny to strangers as a result of her small head and adult teeth, but she was lovely to us with her long, brown hair, large blue eyes and soul-capturing smile. Although still in diapers and unable to speak or hold up her head, Elizabeth was very happy and loved going for long car rides. She especially enjoyed going to school and being surrounded by people, paying no mind to the stares of “normal” children who thought she belonged on the "Island of Misfit Toys." Elizabeth was such a cheerful girl, she won the "Best Smiling Award" at school.



Less than two months after she turned 16, I dropped Elizabeth off at school. Strapping her into her wheelchair, I held her face in my hands, kissed her cheek, and said, “Now be a good girl today.” She smiled as she heard her teacher say what she said every time, “Elizabeth is always a good girl!” With that, I left.



At the end of the day, I got the call I had always feared. “Mrs. Saunders, Elizabeth had a seizure and she’s not breathing." The medical team did all they could, but she was gone. While holding Elizabeth’s body on his lap, my husband looked down into her partially open, lifeless eyes and cried, “No one is ever going to look at me again the way she did.”


Shortly after Elizabeth died, I had a terrible dream: I was visiting a support group of new parents with children disabled by congenital CMV. Suddenly they looked at me and asked, “Why didn’t you do more to warn us about CMV?”

Although I had written articles about CMV and a book about Elizabeth’s adventurous life with her tomboy sister and a series of dysfunctional pets, “Anything But a Dog: the perfect pet for a girl with congenital CMV,” CMV remains largely unknown.

In 2012, as a result of my online presence as a writer and speaker about CMV, I received an email from a distressed grandmother about her grandson born with congenital CMV. The baby’s mother was a high school student interning in a Connecticut childcare center. The young mother, just like me many years earlier, was unaware she was putting her pregnancy at greater risk by working in daycare with young children.  When I visited the family in the hospital, the attending nurse asked me, "Knowing what you do about CMV, why haven’t you launched an awareness campaign?"

I explained to the nurse that CMV parents, scientists and doctors have been trying for years to raise awareness, but the real risk of CMV to pregnancies remains little discussed. Like this young mother, every year, 8 - 20% of caregivers/teachers contract cytomegalovirus (CMV).

In 2015, by modeling efforts made in Utah in 2013, I was instrumental in helping Connecticut become the second state to pass a law aimed at battling CMV. Other states have followed suit, but much more needs to be done in regard to prevention education.

I, along with CMV parents, the medical community, and some members of the Daughters of the American Revolution, continue to try to raise awareness of CMV.  

The public needs to be aware that CMV is often found in toddlers receiving group care. In fact, 44% to 100% of two-year-olds in group daycare are excreting CMV (Pass et al., 1986). According to the study, “Child Care Provider Awareness and Prevention of Cytomegalovirus and Other Infectious Diseases(Thackeray et al., 2016), only 18.5% of licensed “in-home” daycare providers have heard of CMV.  Providers do not know how to appropriately sanitize surfaces to reduce spread of disease.” For example, many providers use diaper wipes to clean a surface, but diaper wipes do not sanitize it. “Intervening with child care providers and parents through child care facilities are key opportunities to reduce prevalence of CMV infection and other diseases.”

My current goal is to make CMV prevention required training in child care centers across the country in accordance with recommendations made by the American Academy of Pediatrics (AAP) in their co-authored book, Caring For Our Children.
The AAP recommends that caregivers/teachers receive counseling about their increased exposure to CMV, importance of hand-washing, and avoiding contact with urine, saliva, and nasal secretions. “Increasing risk perception is important because providers may not be concerned about taking measures to reduce the probability of infection if they feel that they are at low risk” (Thackeray et al., 2016).

To help educate childcare providers and mothers of children in daycare (who are also at increased risk for CMV, Pass et al., 1986), I provide presentations and educational materials for the whole family with my “color-me-in” fairytale, Once Upon a Placemat: A Table Setting Tale (2016), which includes a free teaching toolkit. In my fairytale, "Grandma" speaks for Miss Cup to enforce germ prevention and uses Mr. Knife's fear of the dish running away with the spoon to teach table-setting. My toolkit includes “color-me-in” placemats with the tableware characters for laminating and using as a child’s table-setting reminder. The flip side of the placemat includes germ prevention tips and hand-washing instructions. I also produced a video geared to children to introduce them to the placemat characters with instructions on how to download the free placemats.

I provide CMV prevention education through workshops, public service announcements, health fairs, and articles such as "The Danger of Spreading CMV: How We Can Protect Our Children" (ChildCare Aware of America, 2017). I interview health and wellness experts such as Yale University doctors on my TV show, “The Lisa Saunders Show” (SEC-TV, channel 12), which is also uploaded to YouTube. I write extensively about CMV for my Congenital CMV blog, newsletters, and provide written material for germ-fighting organizations such as Henry the Hand. On my Facebook pages, CMV in Child Care and Congenital CMV News, I try to encourage behavior changes with posts such as “Keep Your Cups to Yourself” and effective hand-washing tips.

Upon request, I lecture at conferences nationwide such as those held by the Centers for Disease Control and Prevention, Society of Maternal Fetal Medicine, Maternal and Child Health Coalition, and Infection Control Nurses of Connecticut.

As a result of contacting organizations that promote prevention education, the Occupational Safety and Health Administration (OSHA) is now working on a CMV publication for childcare workers nationwide, the MotherToBaby.org updated their CMV fact sheet to add a question specific to occupational exposure, and the Connecticut Office of Early Childhood’s Division of Licensing for Child Care Providers/Operators now includes Congenital Cytomegalovirus (CMV)  under Disease and Prevention” on its website.

Please teach others to wash away CMV so you can help women of childbearing age protect their pregnancy.


###
My CMV presentations include: 

Visiting Nurse Association of Southeastern Connecticut, Waterford, CT (Oct. 4, 2017)
CMV: Protect Your Pregnancy.” Contact: Deborah Buxton-Morris, M.S., R.N.
Program Supervisor, Nurse-Family Partnership of Eastern Connecticut, dbuxton-morris@vnasc.org.

Society of Maternal Fetal Medicine, Las Vegas, NV (January 26, 2017)
"Congenital CMV and Research" – Caesars Palace. www.smfm.org/meetings/2-37th-annual-pregnancy-meeting. Contact: Sabine Bousleiman M.S.N,M.S.PH, Program Director, Columbia University, OBGYN Department, (212) 305-4348, (917) 673-7790, sb1080@cumc.columbia.edu.

Maternal and Child Health (MCH) Coalition, Hamden, CT (December 13, 2016)
Women's Consortium: www.womensconsortium.org. Contact Marijane Carey, mjcarey95@aol.com

Congenital CMV Public Health & Policy Conference, Austin, TX (September 27, 2016)
As One Door Closed, Another Door Opened: CT Congenital CMV Initiative”, co-presented with  Brenda Kinsella Balch, MD, CT pediatrician and Chapter Champion for the American Academy of Pediatrics Early Hearing Detection and Intervention Program, bkbalch@sbcglobal.net. http://cmvconference.org/.  

Connecticut and Congenital CMVwww.cga.ct.gov/med/default.asp. Richard Eighme, Medical Assistance Program Oversight Council, (860) 240-0321, Richard.eighme@cga.ct.gov, or Rep. Susan Johnson, Johnson@cga.ct.gov

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 20, 2015)
Public Testimony for H.B. 5525: “AN ACT CONCERNING CYTOMEGALOVIRUS”

CMV Public Health and Policy Conference, Salt Lake City, UT (September 26, 2014)
How a Parent Can Raise a CMV Prevention Message”. www.cmvconference.org/archive/cmv2014/index.html. Contact: Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, Congenital CMV Disease Research, Clinic & Registry, 832-824-4330, gjdemmle@texaschildrens.org

Westerly Registered Nurse’s Club, Westerly, RI (April 22, 2014)
“Supporting a Connecticut CMV Bill,” Mermaid Café. Contact: Ida Manzella, imanzella@comcast.net

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 28, 2014)
Public Testimony for H.B. 5147: “AN ACT CONCERNING NEWBORN SCREENING FOR CYTOMEGALOVIRUS AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR CYTOMEGALOVIRUS.” 

Infection Control Nurses of Connecticut Annual Spring Seminar, Plantsville, CT (April 2013)
“CMV: Threat to immunocompromised persons” - Aqua Turf Club. http://infectioncontrolct.org/.
Contact Kris Magnussen, Communicable Disease Prevention Supervisor, KMagnussen@llhd.org

CMV 2012 ConferenceSan Francisco, CA (October 29-November 2, 2012)
“Raising CMV Awareness by Writing” - Conference Mission Bay Conference Centre. www.congenitalcmv.org. Contact Lenore Pereira, Ph.D., Founder of Congenital Cytomegalovirus Foundation, and Professor, Cell and Tissue Biology Department, University of California San Francisco, lenore.pereira@ucsf.edu

Siemens Healthcare Diagnostics, Tarrytown, NY (2010)
“Living With Congenital CMV” (webinar). https://usa.healthcare.siemens.com. Katherine Soreng, Ph.D., Director, Clinical and Scientific Marketing, katherine.soreng@siemens.com; Louise Loughran, louise.loughran@siemens.com

Maternal-Infant Services Network, Orange, Sullivan and Ulster Counties, NY (March 20, 2009)
“Pregnant Women Need to Know about CMV” - Perinatal Update 2009. www.misn-ny.org. Contact:
Stephanie Sosnowski, BS, ICCE, CLC, Director of Community Health and Wellness, ssosnowski@misn-ny.org

State University of New York at Rockland, Suffern, NY (December 2, 2008)
“Tragic Kiss: Stop the Spread of CMV” – Organized by a nursing professor. 

Centers for Disease Control and Prevention (CDC), Atlanta, GA (November 5-7, 2008)
“Congenital CMV: My Daughter’s Life and Death” - First International Congenital CMV Conference held in the U.S. See: http://congenitalcmv.blogspot.com/2008/11/cdc-congenital-cmv-cytomegalovirus-and.html. Contact Michael Cannon, Ph.D. mrc7@cdc.gov, a research epidemiologist at the CDC.

Johns Hopkins University, Baltimore, MD (Fall 1995)
“Raising my handicapped daughter” - Guest speaker to a graduate class of special education teachers, therapists, and social workers.  Contact Mary Goodin, M. Ed., OTR, Ssagoodin@cs.com

I also present CMV awareness to local women’s groups such as:
The Woman’s City Club of Norwich, Norwich, CT (2015)
“How a Mother Raised Awareness of CMV and Got Connecticut to Pass a Bill.” Otis Library. Contact Eileen Nagel, eileen.nagel@snet.net



ADDITIONAL IMAGES, ETC: Since Elizabeth's birth, and later death, I have written four books about congenital CMV:


Anything But a Dog! The perfect pet for a girl with CMV (cytomegalovirus) (my memoir about my daughter's life).

Survivng Loss: The Wooder's Tale (a fairy tale inspired by my daughter's death and belief we will all be reunited one day)
Once Upon a Placemat--A table setting tale: Coloring book and CMV prevention tips from Miss Cup. (Click here for video of me introducing book and here for placemats for downloading and coloring.)


Mystic Seafarer's Trail: Misadventures trying to get thin and famous so people will hear about CMV (2012)

Contact Lisa Saunders
PO Box 389,  Mystic, CT 06355, LisaSaunders42@gmail.com
Types of Organizations Lisa collaborates with: click here



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