Saturday, November 19, 2016

Lisa Saunders, CMV Awareness and Policy Advocate


Lisa Saunders
CMV Awareness and Policy Advocate 

Resume for downloading


Lisa Saunders provides presentations and educational materials for the whole family to stop the spread of cytomegalovirus (CMV)--a far bigger threat to the unborn than Zika. She lectures on CMV for organizations such as the Centers for Disease Control and Prevention, Society of Maternal Fetal Medicine, Maternal and Child Health Coalition, Infection Control Nurses of Connecticut, and Siemens Healthcare Diagnostics.

Lisa interviews health and wellness experts on the Lisa Saunders TV Talk Show (SEC-TV, channel 12), which is also uploaded to YouTube.



Lisa can present on the following topics: 
  1. What Caregivers and Pregnant Women Need to Know About CMV
  2. My Story and CMV (includes research
  3. Connecticut and Congenital CMV
  4. How a Parent Can Raise a CMV Prevention Message (including how to get a law passed)
Her work on Connecticut's new CMV law was featured in Cornell Alumni and Connecticut magazines and by the Daughters of the American Revolution.

Lisa writes extensively about congenital CMV for her Congenital CMV blog, press releases, newsletters, and articles, such as "The Danger of Spreading CMV: How We Can Protect Our Children" (ChildCare Aware of America, 2017). She manages the Facebook pages, CMV in Child Care and Congenital CMV News and created a one-page CMV fact sheet for policy makers. Her bibliography with links to sources can be accessed here.

LISA'S CMV AWARENESS & PREVENTION BOOKS
  1. CMV prevention "color-me-in" Fairytale, Once Upon a Placemat: A Table Setting Tale.
  2. Memoir: Anything But a Dog! The perfect pet for a girl with congenital CMV (Unlimited Publishing 2008, Japan, 2017)
  3. Fairytale about losing a child to illness and finding a way to move forward:Surviving Loss: The Woodcutter’s Tale.

CMV PRESENTATIONS AND CONTACTS INCLUDE: 


CMV PRESENTATIONS

Society of Maternal Fetal Medicine, Las Vegas, NV (January 26, 2017)
"Congenital CMV and Research" – Caesars Palace. www.smfm.org/meetings/2-37th-annual-pregnancy-meeting. Contact: Sabine Bousleiman M.S.N,M.S.PH, Program Director, Columbia University, OBGYN Department, (212) 305-4348, (917) 673-7790, sb1080@cumc.columbia.edu.
See study: https://clinicaltrials.gov/ct2/show/NCT01376778

Maternal and Child Health (MCH) Coalition, Hamden, CT (December 13, 2016)
Women's Consortium: www.womensconsortium.org. Contact Marijane Carey, mjcarey95@aol.com

Congenital CMV Public Health & Policy Conference, Austin, TX (September 27, 2016)
As One Door Closed, Another Door Opened: CT Congenital CMV Initiative”, co-presented with  Brenda Kinsella Balch, MD, CT pediatrician and Chapter Champion for the American Academy of Pediatrics Early Hearing Detection and Intervention Program, bkbalch@sbcglobal.net. http://cmvconference.org/.  

Connecticut and Congenital CMV. www.cga.ct.gov/med/default.asp. Richard Eighme, Medical Assistance Program Oversight Council, (860) 240-0321, Richard.eighme@cga.ct.gov, or Rep. Susan Johnson, Johnson@cga.ct.gov

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 20, 2015)
Public Testimony for H.B. 5525: “AN ACT CONCERNING CYTOMEGALOVIRUS”

CMV Public Health & Policy Conference, Salt Lake City, UT (September 26, 2014)
How a Parent Can Raise a CMV Prevention Message”. www.cmvconference.org/archive/cmv2014/index.html. Contact: Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, Congenital CMV Disease Research, Clinic & Registry, 832-824-4330, gjdemmle@texaschildrens.org

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 28, 2014)
Public Testimony for H.B. 5147: “AN ACT CONCERNING NEWBORN SCREENING FOR CYTOMEGALOVIRUS AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR CYTOMEGALOVIRUS.”

Infection Control Nurses of Connecticut Annual Spring Seminar, Plantsville, CT (April 2013)
“CMV: Threat to immunocompromised persons” - Aqua Turf Club. http://infectioncontrolct.org/.
Contact Kris Magnussen, Communicable Disease Prevention Supervisor, KMagnussen@llhd.org

CMV 2012 Conference, San Francisco, CA (October 29-November 2, 2012)
“Raising CMV Awareness by Writing” - Conference Mission Bay Conference Centre. www.congenitalcmv.org. Contact Lenore Pereira, Ph.D., Founder of Congenital Cytomegalovirus Foundation, and Professor, Cell and Tissue Biology Department, University of California San Francisco, lenore.pereira@ucsf.edu

Siemens Healthcare Diagnostics, Tarrytown, NY (2010)
“Living With Congenital CMV” (webinar). https://usa.healthcare.siemens.com. Katherine Soreng, Ph.D., Director, Clinical and Scientific Marketing, katherine.soreng@siemens.com; Louise Loughran, louise.loughran@siemens.com

Maternal-Infant Services Network, Orange, Sullivan and Ulster Counties, NY (March 20, 2009)
“Pregnant Women Need to Know about CMV” - Perinatal Update 2009. www.misn-ny.org. Contact:
Stephanie Sosnowski, BS, ICCE, CLC, Director of Community Health and Wellness, ssosnowski@misn-ny.org

State University of New York at Rockland, Suffern, NY (December 2, 2008)
“Tragic Kiss: Stop the Spread of CMV” – Organized by a nursing professor. 

Centers for Disease Control and Prevention (CDC), Atlanta, GA (November 5-7, 2008)
“Congenital CMV: My Daughter’s Life and Death” - First International Congenital CMV Conference held in the U.S. See: http://congenitalcmv.blogspot.com/2008/11/cdc-congenital-cmv-cytomegalovirus-and.html. Contact Michael Cannon, Ph.D. mrc7@cdc.gov, a research epidemiologist at the CDC.

Johns Hopkins University, Baltimore, MD (Fall 1995)
Raising my handicapped daughter” - Guest speaker to a graduate class of special education teachers, therapists, and social workers.  Contact Mary Goodin, M. Ed., OTR, Ssagoodin@cs.com

I also present CMV awareness to local groups such as:
The Woman’s City Club of Norwich, Norwich, CT (2015)
“How a Mother Raised Awareness of CMV and Got Connecticut to Pass a Bill.” Otis Library.
Contact Eileen Nagel, eileen.nagel@snet.net

Westerly Registered Nurse’s Club, Westerly, RI (April 22, 2014)
“Supporting a Connecticut CMV Bill,” Mermaid Café. Contact: Ida Manzella, imanzella@comcast.net

COMMENDATIONS

ARTICLES & TV INTERVIEWS THAT INCLUDE MY COMMENTS OR CMV WORK



MY BOOKS, VIDEOS, AND OTHER RESOURCE MATERIALS
  1. Coloring book: Once Upon a Placemat: A Table Setting Tale - CMV prevention tips from “Miss Cup” (2016). Fun, Free Teaching Toolkit for Students and Their Families:
"Grandma" uses Miss Cup to enforce germ prevention and uses Mr. Knife's fear that the dish will run away with the spoon to teach table-setting in the educational coloring book, "Once Upon a Placemat: A Table Setting Tale." FREE Teaching Toolkit includes:
  1. Music/image video about my daughter’s life: Girl with congenital cytomegalovirus (CMV)
  2. Memoir: Anything But a Dog! The perfect pet for a girl with CMV (Unlimited Publishing, 2008, Thousand Books, Japan, 2017)
  3. Booklet: Surviving Loss: The Woodcutter’s Tale: Fairytale about losing a child plus moving forward (2013)
  4. Mystic Seafarer's Trail: Misadventures trying to get thin and famous so people will hear about CMV (2012)

MY ARTICLES, TESTIMONIES, PRESENTATIONS

PROFESSIONAL EXPERIENCE

INDEPENDENT WRITING/MARKETING CONSULTANT, Nov. 2010 – Present
New England/New York media and networking consultant.  Write press releases, biographies, and marketing materials for clients that include:
  • National Field Service Corporation
  • Act II Publications
  • Connie Howard Music

MYSTIC SEAPORT, Mystic, CT, 2010 – Present (part-time)
Historical Interpreter: Orally present maritime history and artifacts to the general public.

STATE UNIVERSITY OF NEW YORK AT ROCKLAND, Suffern, NY, 2006 – 2010
Campus Communications Assistant
  • Promoted events and programs to the media, authoring press releases, which resulted in newspaper coverage of the college and faculty. Wrote the alumni newsletter, SCENE, with quarterly circulation of 35,000. Used Twitter, Facebook, and RCC Speakers Bureau as additional promotional tools.
Key Accomplishments
  • Awarded by the National Council for Marketing & Public Relations, District I: “Gold Medallion” for Academic Convocation Booklet (2010); Silver for Departmental Brochures (2010); and Bronze for ad print series, which featured noteworthy alumni (2009). 
  • Received national coverage on Fox and Friends and in Associated Press through press releases relating the circumstances of individual students or faculty to current events.

NATIONAL FIELD SERVICE CORPORATION, Suffern, NY, 1998 – 2008 (presently consulting)
Recruiter / Marketing Specialist for consulting company
Interviewed approximately 80 candidates monthly and communicated with clients on employment needs in the utility, communications, and right-of-way industries. Represented company at job fairs and coordinated marketing events, including annual 100-guest Christmas party and sleepover event at West Point Academy. Placed many applicants with AT&T. Maintained database of applicants in People Trak.

LICENSED HOME DAY CARE PROVIDER, Rockville, MD, 1987-1993
Provided in-home care and educational programs for up to six children.







Ceremonial bill signing for Public Act 15-10: An Act Concerning Cytomegalovirus at the Office of Governor Dannel P. Malloy on 7/28/15. L to R: Jane Baird, Government Relations, Connecticut Children's Medical Center; Dr. Wallis Molchen, Chief Resident, Connecticut Children’s Medical Center; Jane Brancifort, Deputy Commissioner, Connecticut Department of Public Health ; John Hampton For State Representative; Dr. Brenda K. Balch, American Academy of Pediatrics EHDI (Early Hearing Detection and Intervention)Chapter Champion; Office of Lt. Governor Nancy WymanLisa Saunders, Author/TV Host; parent representative, Congenital Cytomegalovirus Foundation, holding photo of daughter Elizabeth of Anything But a Dog - Girl with congenital CMV - cytomegalovirus ; State Representative Kevin Ryan; Governor Dannel P. Malloy; Cathy Osten for the 19th District State Senator; Ken Hiscoe, Pfizer, Government Relations; Jarred and his mother, Melvette Ruffin; DeVaughn Ward, Liaison, Department of Public Health; and Kinson Perry, lobbyist at Rome, Smith & Lutz.
###

NOTE FROM LISA SAUNDERS


Title of Work: “CMV: Protect Your Pregnancy”

Most pregnant women know to avoid changing the kitty litter to avoid toxoplasmosis, a viral cause of birth defects. They have also heard how to protect their pregnancies from Zika, the mosquito virus that can cause microcephaly. Very few women, however, know how to prevent a far greater menace—cytomegalovirus (CMV), the leading viral cause of birth defects, more common a cause of disabilities than Down syndrome and fetal alcohol syndrome. 

What is CMV? 
According to the CDC, "Cytomegalovirus (pronounced sy-toe-MEG-a-low-vy-rus), or CMV, is a common virus that infects people of all ages. Over half of adults by age 40 have been infected with CMV...Most people infected with CMV show no signs or symptoms. However, CMV infection can cause serious health problems for people with weakened immune systems, as well as babies infected with the virus before they are born (congenital CMV)."


CMV is often found in child care centers. I was unaware that cytomegalovirus (CMV) was an occupational risk for daycare educators when I became a licensed home daycare provider in Maryland in 1987. I didn’t know that CMV could devastate my pregnancy with Elizabeth, who was born severely disabled by congenital CMV in 1989. Today, most U.S. daycare providers are still not aware of their increased risk for contracting CMV. According to the New York TimesCMV Is a Greater Threat to Infants Than Zika, but Far Less Often Discussed (2016).


At the time of Elizabeth’s birth, I was operating my licensed home daycare center and volunteering in our church nursery, additionally putting my pregnancy at risk. Elizabeth was born with an abnormally small head, known as microcephaly, was profoundly mentally impaired, legally blind, and had cerebral palsy. After her birth, I was given information from the Centers and Disease Control Prevention (CDC) informing me that "People who care for or work closely with young children may be at greater risk of CMV infection than other people because CMV infection is common among young children..."

This information came too late to spare my daughter the years of suffering that lay ahead of her. Nowhere in my daycare licensing literature or training was CMV mentioned. CMV prevention measures were not discussed in my prenatal doctor visits.

Though Elizabeth grew into a very cheerful girl who won the "Best Smiling Award" at school, she couldn't hold up her head and lived as a three-month-old for 16 years, requiring several surgeries such as spinal fusion. She developed epilepsy and was gradually losing her hearing by the time she died at 16 during a seizure in 2006 while we were living in New York. I had a bad dream shortly after Elizabeth’s death about new parents wondering why I hadn’t done more to warn them about the precautions to take against CMV. Although I wrote about Elizabeth’s adventurous life with her tomboy sister and a series of dysfunctional pets, including a homeless older dog that joined her on the couch in my memoir, “Anything But a Dog: the perfect pet for a girl with congenital CMV,” congenital CMV still remains largely unknown.

In 2010, my husband and I moved to Connecticut. In 2012, I received an email from a distressed grandmother about her grandson born with congenital CMV in a Connecticut hospital (I am the parent representative of the Congenital Cytomegalovirus Foundation). The mother of her grandson was a high school student interning in a Connecticut daycare center. The young mother, just like me over 20 years earlier, was unaware she was putting her pregnancy at greater risk by working in daycare with young children.  When I visited the family in the hospital, the attending nurse asked me, "Knowing what you do about CMV, why haven’t you launched an awareness campaign?"

I explained to the nurse that CMV parents, scientists and doctors have been trying for years to raise awareness, but the real risk of CMV to pregnancies remains little discussed—a real tragedy for daycare workers in light of recommendations in light of the fact that every year, 8 - 20% of caregivers/teachers contract cytomegalovirus (CMV). The American Academy of Pediatrics recommends counseling caregivers of their increased exposure to CMV, importance of hand-washing, and avoiding contact with urine, saliva, and nasal secretions. Mothers of children in daycare are also at increased risk for CMV (Pass et al., 1986).

According to the study published in 2016, “Child Care Provider Awareness and Prevention of Cytomegalovirus and Other Infectious Diseases” by Rosemary Thackeray and Brianna M. Magnusson, “Women who are exposed to CMV prior to conception or within the first trimester of pregnancy and seroconvert have increased risk of their infant being infected with CMV.” Despite a daycare worker’s high risk of contracting CMV, only 18.5% of licensed “in-home” daycare providers have heard of it. The authors also state: “Providers do not know how to appropriately sanitize surfaces to reduce spread of disease.” For example, many providers use diaper wipes to clean a surface, but diaper wipes alone do not sanitize it. “Awareness of CMV and how to prevent transmission of infectious disease is low. Intervening with child care providers and parents through child care facilities are key opportunities to reduce prevalence of CMV infection and other diseases.”

In 2015, I collaborated with members of Anna Warner Bailey DAR Chapter (members wrote letters and invited me to speak on the topic), medical professionals, and CMV families to help Connecticut become the second state in the U.S. to pass a CMV testing law, which was featured in Cornell Alumni and Connecticut magazines in addition to the New York Times. 

Other successes include:
  • The MotherToBaby.org Education Committee updated their CMV fact sheet to add a question specific to occupational exposure.
  • Child Care Aware plans a blog post on CMV.
  • Connecticut Office of Early Childhood’s Division of Licensing for Child Care Providers/Operators now includes “Congenital Cytomegalovirus” under Disease and Prevention” on its website, though my ultimate goal is for CMV prevention to be included in the required training for licensing.
  • Occupational Safety and Health Administration (OSHA) is now working on publications to provide CMV prevention education for childcare workers in daycare centers nationwide. 
COMMENDATIONS
My current goal is to make CMV prevention required training in child care centers in accordance with recommendations made by the American Academy of Pediatrics (AAP) in their co-authored book, Caring For Our Children, which includes “Standard 7.7.1.1Staff Education and Policies on Cytomegalovirus (CMV).
To that end, I provide presentations and educational materials for the whole family to stop the spread of CMV. I have lectured for several organizations such as the Centers for Disease Control and Prevention, Society of Maternal Fetal Medicine, Maternal and Child Health Coalition, Infection Control Nurses of Connecticut, and Siemens Healthcare Diagnostics. Presentation titles have included:
  • What Caregivers and Pregnant Women Need to Know About CMV
  • Congenital CMV and Research 
  • Connecticut and Congenital CMV
  • How a Parent Can Raise a CMV Prevention Message (including how to get a law passed)
I also interview health and wellness experts on the Lisa Saunders TV Talk Show (SEC-TV, channel 12), which is uploaded to YouTube. I write extensively about CMV for my Congenital CMV blog, press releases, newsletters, and articles and manage the Facebook pages CMV in Child Care and Congenital CMV News). I coordinate CMV educational campaigns through workshops, televised public service announcements, and health fairs, and through behavior change programs such as “Keep Your Cups to Yourself” and hand-washing. 

My other CMV work includes:
  • Promoting CMV prevention programs to target populations such as child care workers and women of childbearing age by utilizing existing resources created by the National CMV Foundation, Congenital CMV Disease Research, Clinic and Registry, Congenital Cytomegalovirus Foundation, Centers for Disease Control and Prevention (CDC), and National CMV Registry for Pregnant Women (part of the CMV Research Foundation Inc.), in addition to other birth defects prevention organizations.
  • Consulting regularly with the country's leading CMV medical experts.
  • Contacting relevant organizations requesting CMV education be included in training materials, literature and websites. Currently in touch with agencies such as Occupational Safety and Health Administration (OSHA), Child Care Aware of America, March of Dimes, and a daycare union. 
  • Consulting with legislators to create CMV prevention education laws--particularly in regard to daycare centers. 
  • Reporting on CMV awareness and prevention among daycare workers and employers. 
  • Maintaining an extensive bibliography with live links to resource articles and presentations.
  • Researching health promotion and disease prevention campaigns through national observances: January: National Birth Defects Prevention Month; February: International Prenatal Infection Prevention Month; June: National Congenital CMV Awareness Month. In 2011, the U.S. Senate passed legislation recommending that “more effort be taken to counsel women of childbearing age of the effect this virus can have on their children”; October: 15 - 21 International Infection Prevention Week; October 15: Global Handwashing Day

MY BOOKS, VIDEOS, AND OTHER RESOURCE MATERIALS
  1. Coloring book: Once Upon a Placemat: A Table Setting Tale - CMV prevention tips from “Miss Cup” (2016
  1. Fun, Free Teaching Toolkit for Students and Their Families: "Grandma" uses Miss Cup to enforce germ prevention and uses Mr. Knife's fear that the dish will run away with the spoon to teach table-setting in the educational coloring book, "Once Upon a Placemat: A Table Setting Tale." Tool kit includes: Placemats--Side one: Placemat with tableware characters with space for your coloring artist's name (perfect for laminating and using as a table-setting reminder) plus there is space available for an organization's information if so desired before copying. Side two: Germ prevention tips and hand-washing instructions. Video geared to children introduces the placemat characters and how to download free placemats
  2. Music/image video about my daughter’s life: Girl with congenital cytomegalovirus (CMV)
  3. Memoir: Anything But a Dog! The perfect pet for a girl with CMV (Unlimited Publishing, 2008, Thousand Books, Japan, 2017)
  4. Booklet: Surviving Loss: The Woodcutter’s Tale: Fairytale about losing a child plus moving forward (2013)
  5. Mystic Seafarer's Trail: Misadventures trying to get thin and famous so people will hear about CMV (2012)

MY ARTICLES, TESTIMONIES, PRESENTATIONS

ARTICLES AND TV INTERVIEWS THAT INCLUDE MY COMMENTS OR CMV WORK

My CMV presentations include: 

Society of Maternal Fetal Medicine, Las Vegas, NV (January 26, 2017)
"Congenital CMV and Research" – Caesars Palace. www.smfm.org/meetings/2-37th-annual-pregnancy-meeting. Contact: Sabine Bousleiman M.S.N,M.S.PH, Program Director, Columbia University, OBGYN Department, (212) 305-4348, (917) 673-7790, sb1080@cumc.columbia.edu.
See study: https://clinicaltrials.gov/ct2/show/NCT01376778

Maternal and Child Health (MCH) Coalition, Hamden, CT (December 13, 2016)
Women's Consortium: www.womensconsortium.org. Contact Marijane Carey, mjcarey95@aol.com

Congenital CMV Public Health & Policy Conference, Austin, TX (September 27, 2016)
As One Door Closed, Another Door Opened: CT Congenital CMV Initiative”, co-presented with  Brenda Kinsella Balch, MD, CT pediatrician and Chapter Champion for the American Academy of Pediatrics Early Hearing Detection and Intervention Program, bkbalch@sbcglobal.net. http://cmvconference.org/.  

Connecticut and Congenital CMVwww.cga.ct.gov/med/default.asp. Richard Eighme, Medical Assistance Program Oversight Council, (860) 240-0321, Richard.eighme@cga.ct.gov, or Rep. Susan Johnson, Johnson@cga.ct.gov

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 20, 2015)
Public Testimony for H.B. 5525: “AN ACT CONCERNING CYTOMEGALOVIRUS”

CMV Public Health and Policy Conference, Salt Lake City, UT (September 26, 2014)
How a Parent Can Raise a CMV Prevention Message”. www.cmvconference.org/archive/cmv2014/index.html. Contact: Gail J Demmler-Harrison, MD, Professor, Pediatrics, Section Infectious Diseases, Baylor College of Medicine, Attending Physician, Infectious Diseases Service, Texas Children's Hospital, Congenital CMV Disease Research, Clinic & Registry, 832-824-4330, gjdemmle@texaschildrens.org

Westerly Registered Nurse’s Club, Westerly, RI (April 22, 2014)
“Supporting a Connecticut CMV Bill,” Mermaid Café. Contact: Ida Manzella, imanzella@comcast.net

Connecticut Public Health Committee, Capitol Legislative Office Building, Hartford, CT (February 28, 2014)
Public Testimony for H.B. 5147: “AN ACT CONCERNING NEWBORN SCREENING FOR CYTOMEGALOVIRUS AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR CYTOMEGALOVIRUS.” 

Infection Control Nurses of Connecticut Annual Spring Seminar, Plantsville, CT (April 2013)
“CMV: Threat to immunocompromised persons” - Aqua Turf Club. http://infectioncontrolct.org/.
Contact Kris Magnussen, Communicable Disease Prevention Supervisor, KMagnussen@llhd.org

CMV 2012 ConferenceSan Francisco, CA (October 29-November 2, 2012)
“Raising CMV Awareness by Writing” - Conference Mission Bay Conference Centre. www.congenitalcmv.org. Contact Lenore Pereira, Ph.D., Founder of Congenital Cytomegalovirus Foundation, and Professor, Cell and Tissue Biology Department, University of California San Francisco, lenore.pereira@ucsf.edu

Siemens Healthcare Diagnostics, Tarrytown, NY (2010)
“Living With Congenital CMV” (webinar). https://usa.healthcare.siemens.com. Katherine Soreng, Ph.D., Director, Clinical and Scientific Marketing, katherine.soreng@siemens.com; Louise Loughran, louise.loughran@siemens.com

Maternal-Infant Services Network, Orange, Sullivan and Ulster Counties, NY (March 20, 2009)
“Pregnant Women Need to Know about CMV” - Perinatal Update 2009. www.misn-ny.org. Contact:
Stephanie Sosnowski, BS, ICCE, CLC, Director of Community Health and Wellness, ssosnowski@misn-ny.org

State University of New York at Rockland, Suffern, NY (December 2, 2008)
“Tragic Kiss: Stop the Spread of CMV” – Organized by a nursing professor. 

Centers for Disease Control and Prevention (CDC), Atlanta, GA (November 5-7, 2008)
“Congenital CMV: My Daughter’s Life and Death” - First International Congenital CMV Conference held in the U.S. See: http://congenitalcmv.blogspot.com/2008/11/cdc-congenital-cmv-cytomegalovirus-and.html. Contact Michael Cannon, Ph.D. mrc7@cdc.gov, a research epidemiologist at the CDC.

Johns Hopkins University, Baltimore, MD (Fall 1995)
“Raising my handicapped daughter” - Guest speaker to a graduate class of special education teachers, therapists, and social workers.  Contact Mary Goodin, M. Ed., OTR, Ssagoodin@cs.com

I also present CMV awareness to local women’s groups such as:
The Woman’s City Club of Norwich, Norwich, CT (2015)

“How a Mother Raised Awareness of CMV and Got Connecticut to Pass a Bill.” Otis Library. Contact Eileen Nagel, eileen.nagel@snet.net
ADDITIONAL IMAGES, ETC: Since Elizabeth's birth, and later death, I have written four books about congenital CMV:


Anything But a Dog! The perfect pet for a girl with CMV (cytomegalovirus) (my memoir about my daughter's life).

Survivng Loss: The Wooder's Tale (a fairy tale inspired by my daughter's death and belief we will all be reunited one day)
Once Upon a Placemat--A table setting tale: Coloring book and CMV prevention tips from Miss Cup. (Click here for video of me introducing book and here for placemats for downloading and coloring.)


Mystic Seafarer's Trail: Misadventures trying to get thin and famous so people will hear about CMV (2012)

Contact Lisa Saunders
PO Box 389,  Mystic, CT 06355, LisaSaunders42@gmail.com
Types of Organizations Lisa collaborates with: click here



No comments: