See below for the answers to the following questions:
Who I am and how congenital CMV affected my family:
I am the Congenital CMV Foundation parent representative and author of Anything But a Dog! The perfect pet for a girl with congenital CMV (cytomegalovirus). OB/GYNs didn’t tell me how to prevent CMV until after my severally brain-damaged daughter Elizabeth was born. Then I learned that those working in daycare, or have a child in daycare, are at a higher risk for catching it as preschoolers are the majority of carriers. Women working in daycare, or who have a child in daycare, are still not routinely warned of the precautions to take when caring for small children.
For every 1000 pregnancies that result in a LIVE birth, about 1 to 2 babies will have permanent CMV-related problems.
Jaundice (yellow skin and eyes)
Purple skin splotches
Small size at birth
Permanent Symptoms or Disabilities
Lack of coordination
7. How do the birth defects caused by congenital CMV compare to the other well-known causes of disabilities such as Down syndrome?
8. Can you prevent congenital CMV in any way?
11. Can you treat CMV in any way?
12. What percent of women of child-bearing age know about CMV?
I would have a blood test to determine if I had an active infection or if I had immunity to the disease from a prior infection. If I had an active infection, I would wait for a doctor to clear me to get pregnant. If I had never had it before, I would not work with young children in daycare and I would be careful not to kiss my toddler around the mouth or share food with her.
I wish I had heard of CMV and that it causes miscarriages and birth defects before or with my pregnancy. If I had heard of CMV, I wish I had known about the currently recommended CMV precautions that may reduce the risk of transmission of CMV to me during pregnancy from toddlers and others close to me in my family and in the day care or home care setting.
The prevalence of congenital toxoplasmosis is estimated to be between 1 of 12,000 live births [based on Massachusetts newborn screening data-the only state or one of the few states that screens for toxoplasmosis at birth] to as high as 5 per 1,000 births in the US.