Wednesday, June 16, 2021

HOW YOU CAN HELP GET CMV EDUCATION LAW PASSED IN NY. Listen to "Had I Known"




What can you do to help?

The CMV education bill (Senate Bill:S6287) was passed by the Senate at the close of the 2021 Legislative Session, but it remained pending in the Assembly Children and Families Committee. While no further action is expected during the off-Session (from now until Jan. 2022), please use this time to gather the support of Assembly members. 

Email and/or call your assemblymember (find yours at: https://nyassembly.gov/mem/search/) and ask them to co-sponsor A7560 (https://www.nysenate.gov/legislation/bills/2021/a7560). (Just FYI, the primary sponsor of the bill is Assemblymember Linda B. Rosenthal and the following are currently co-sponsors: William Magnarelli and Fred Thiele. Assemblyman Brian Manktelow said he would co-sponsor, but I don't see his name on it yet.)


A phone call usually only takes 30 seconds because you will often just reach the answering machine or a staff member taking messages for your assemblymember. An email is quick, too. Either way, you can say something like:

My name is __________and I live in your district on _____________ (street) in the Town of ___________. I want you to co-sponsor Assembly Bill A7560, which is the same as Senate Bill:S6287 that already passed, because I want to ensure women are educated about how to protect their pregnancies from the leading viral cause of birth defects, cytomegalovirus or CMV. As you are aware, New York proclaimed June 2021 as Cytomegalovirus Awareness Month, stating, that "It is imperative that women are educated about the virus itself and simple preventative measures, such as not sharing food with toddlers, and washing one's hands after changing infants and toddlers diapers..."

The CDC has a lot of information about this preventable disease at: cdc.gov/cmv


Thank you.


***

A) Then, if super ambitious, contact the 17 members of the Assembly Children and Families Committee, 

Chair Andrew Hevesi


Members

Emails of Committee members:

HevesiA@nyassembly.gov

andersonk@nyassembly.gov

byrnesm@nyassembly.gov

 clarks@nyassembly.gov

 cruzc@nyassembly.gov

 darlingt@nyassembly.gov

 DavilaM@nyassembly.gov

FrontusM@nyassembly.gov

gallahanj@nyassembly.gov

gonzalezrojasj@nyassembly.gov

 jeanpierrek@nyassembly.gov

 lunsfordj@nyassembly.gov

meeksd@nyassembly.gov

 MillerML@nyassembly.gov

 mitaynesm@nyassembly.gov

 salkaj@nyassembly.gov

 vanelc@nyassembly.gov




B) Contact all all 25 co-sponsors of the June 2021 Cytomegalovirus Awareness Month proclamation. Assembly Member Directory: https://assembly.state.ny.us/mem/

Here is the breakout:

25 co-sponsors of the June 2021 Cytomegalovirus Awareness Month proclamation  


Joe Angelino
District 122
angelinoj@nyassembly.gov
1 Kattelville Road
Suite 1
Binghamton, NY 13901
607-648-6080
Fax: 607-648-6089
LOB 549
Albany, NY 12248
518-455-5741
Fax: 518-455-5864


Jeffrion L. Aubry
District 35
AubryJ@nyassembly.gov
98-09 Northern Blvd.
Corona, NY 11368
718-457-3615
Fax: 718-457-3640
LOB 646
Albany, NY 12248
518-455-4561
Fax: 518-455-4565


Karl Brabenec
District 98
brabeneck@nyassembly.gov
28 North Main St.
Suite 2
Florida, NY 10921
845-544-7551
Fax: 845-544-7553
LOB 329
Albany, NY 12248
518-455-5991


Marianne Buttenschon 
Robert C. Carroll   
Michael Cusick 
Inez E. Dickens 
Joe DeStefano
 Michael Durso  
Sandy Galef   
Jodi Giglio 
Stephen Hawley 
Donna Lupardo (U)  
Brian Manktelow (He said he would co-sponsor it)  
John T. McDonald III 
John K. Mikulin   
Brian D. Miller 
Angelo J. Morinello 
N. Nick Perry 
Diana Richardson 
John Salka  --HE IS ALSO ON ASSEMBLY CHILDREN AND FAMILES COMMITTEE
Chris Tague 
Helene Weinstein 
Stefani Zinerman 




C)  10 Assemblymembers still in office who co-sponsored the CMV testing bill that passed in 2018, Assembly Bill A587C:

Steve Englebright

District 4
EngleS@nyassembly.gov
149 Main Street
East Setauket, NY 11733
631-751-3094
LOB 621
Albany, NY 12248
518-455-4804

Aileen M. Gunther
District 100
GuntheA@nyassembly.gov
18 Anawana Lake Road
Monticello, NY 12701
845-794-5807
Middletown City Hall, 3rd floor
16 James Street
Middletown, NY 10940
845-342-9304
LOB 826
Albany, NY 12248
518-455-5355

Alicia Hyndman
District 29
hyndmana@nyassembly.gov
232-06A Merrick Blvd.
Springfield Gardens, NY 11413
718-723-5412
LOB 702
Albany, NY 12248
518-455-4451

Donna A. Lupardo [she also co-sponsored June CMV Awareness Month]
District 123
LupardoD@nyassembly.gov
State Office Building, 17th Floor
44 Hawley St.
Binghamton, NY 13901
607-723-9047
LOB 828
Albany, NY 12248
518-455-5431
Fax: 518-455-5693

David G. McDonough
District 14
mcdonoughd@nyassembly.gov
404 Bedford Ave.
Bellmore, NY 11710
516-409-2070
Fax: 516-409-2073
LOB 443
Albany, NY 12248
518-455-4633
Fax: 518-455-5559

Catherine Nolan
District 37
NolanC@nyassembly.gov
47-40 21 Street Room 810
Long Island City, NY 11101
718-784-3194
Fax: 718-472-0648
LOB 739
Albany, NY 12248
518-455-4851

Angelo Santabarbara
District 111
SantabarbaraA@nyassembly.gov
2550 Riverfront Center
Amsterdam, NY 12010
518-843-0227
433 State Street
Schenectady, NY 12305
518-382-2941
LOB 654
Albany, NY 12248
518-455-5197

Jo Anne Simon
District 52
simonj@nyassembly.gov
341 Smith Street
Brooklyn, NY 11231
718-246-4889
LOB 435
Albany, NY 12248
518-455-5426

Phil Steck
District 110
SteckP@nyassembly.gov
1609 Union Street
Schenectady, NY 12309
518-377-0902
Fax: 518-377-0458
LOB 627
Albany, NY 12248
518-455-5931
Fax: 518-455-5840

Kenneth Zebrowski
District 96
ZebrowskiK@nyassembly.gov
67 North Main Street
New City, NY 10956
845-634-9791
LOB 625
Albany, NY 12248
518-455-5735  

MEDIA COVERAGE OF CMV


2021 
  1. Music video of child placing CMV rocks at the Trail of Hope in Lyons, "Had I Known, Lyrics and Music by Debra Lynn Alt," produced by Mark De Cracker, Jun 8, 2021
  2. Finger Lakes Times, "Trail of Hope celebration in Lyons marks CMV Month in New York", Steve Buchiere (Jun 11, 2021). 
  3. Finger Lakes Times: "MAKING A DIFFERENCE: Couple brings awareness to threat to infant health: CMV", Steve Buchiere (June 4, 2021).
  4. The Citizen:  "NY Senate passes bill, named for CNY couple's daughter, to boost CMV awareness",  Robert Harding (June 2, 2121). 
  5. Syracuse Woman magazine, "Fighting CMV One Step at a Time (p.28)", Emma Vallelunga (May 2021) (p.29 image of Stop CMV hand, rock and shirt)
  6. The Citizen: "'Elizabeth's law,' named for CNY couple's daughter, would boost CMV awareness", Robert Harding (May 4,2021)
  7. The Citizen, "Challenge for Change: Walking across NY to raise awareness of CMV", David Wilcox (Mar 31, 2021)

2016 
  1. New York Times, "CMV Is a Greater Threat to Infants Than Zika, but Far Less Often Discussed" By Catherine Saint Louis (Oct. 24, 2016).
  2. NYMetroParents, “Could CMV Be the Cause of My Baby's Failed Hearing Test?” : “This is a very common virus, but it remains somewhat under the radar. A woman can unknowingly acquire it during pregnancy, and pass the infection to the unborn baby," states Sunil K. Sood, M.D., Chair of Pediatrics, South Shore University Hospital, Attending Physician, Infectious Diseases, Cohen Children's Medical Center and Professor, Zucker School of Medicine at Hofstra/Northwell.  "CMV is spread from person to person through body fluids. Day care workers, nurses, mothers of young children, and others who work with young children are at greatest risk of exposure to CMV. Since young children commonly carry CMV, pregnant women and women planning pregnancies should take extra care to avoid urine and saliva from young children” (March 21, 2016).
COMING SOON
  1. Spectrum News, "TO BE ANNOUNCED", Jessica Houghtaling (June 2021).

OTHER FEATURING CMV LAW PASSED IN CONNTECTICUT/LISA SAUNDERS
  1. News 8, “Mystic mother raises awareness of CMV, a risk for pregnant women and their babies”, Sarah Cody (June 13, 2018) 
  2. Cornell Alumni Magazine: "In Memory of Elizabeth: Her daughter's death from a preventable disability spurs Lisa Avazian Saunders '82 into action," Alexandra Bond (Sept/Oct 2015).
  3. Times Herald RecordWhat every pregnant woman needs to know, Deborah J. Botti

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