Congenital Cytomegalovirus Foundation
15 Reasons Why Caregivers/Teachers Should Know About CMV
Shortly after moving to Connecticut in 2010, Saunders received a call from a local grandmother who said her grandson was just born disabled by congenital CMV. Saunders said, “The baby's mother had been a college student interning at a Connecticut day care center while pregnant. She, too, had not been educated about CMV and how to protect her pregnancy. When I visited the mother and baby in the hospital, the attending nurse asked me why more wasn’t being done to raise awareness of this leading viral cause of birth defects."
Saunders also wrote "Have a Toddler or Care for One?" which people can share plus her outline and talking points for a presentation on CMV.
1."Staff Education and Policies on Cytomegalovirus (CMV)," American Academy of Pediatrics (AAP) et al., Caring for Our Children: http://cfoc.nrckids.org/StandardView/220.127.116.11
2."Situations that Require Hand Hygiene" (AAP et al., Caring for Our Children): http://cfoc.nrckids.org/StandardView/3.2.2
3. National CMV Foundation Awareness Flyer with the Connecticut Department of Public Health (DPH) logo found under the "Information for Healthcare Providers” section at: http://www.ct.gov/dph/cwp/view.asp?a=3138&q=527824
4. Fact sheet from MotherToBaby.org on CMV includes child care providers.
5.Connecticut Department of Public Health posts on its website: CDC Recommendations for People Who Care for Infants and Children
6.National CMV Foundation features several types of CMV flyers for downloading.
7.Congenital CMV Disease Research Clinic and Registry provides resources for women of childbearing age.
8. CMV prevention brochure specifically for child care providers: Utah's brochure for childcare providers).
9.For students and families: Free CMV Teaching Tool Kit: "Once Upon a Placemat: A Table Setting Tale" by Lisa Saunders—Educational coloring book and fairytale emphasizes hand-washing and refraining from sharing cups/utensils.
10, Henry The Hand teaching supplies/programs for schools. Created newsletter campaign on CMV.
RESOURCES FOR TRAINING CHILD CARE WORKERS
Brenda K. Balch, MD, Connecticut's American Academy of Pediatrics Early Hearing Detection and Intervention Chapter Champion, who was instrumental in the passage of the Connecticut CMV bill. She has a strong interest in congenital CMV because it is a major cause of hearing loss (she sent Testimony to CT’s HB 5525). Contact: email@example.com
514 Diane Lane, Richmond, VA 23227
Stuart Adler, M.D., Professor Emeritus of Pediatrics and Professor of Microbiology and Immunology, Virginia Commonwealth University. (sent Letter of Testimony to CT’s HB 5147).
Phone: (804) 264-8296, Email: firstname.lastname@example.org
Although the U.S. Senate passed legislation in 2014 recommending that “more effort be taken to counsel women of childbearing age of the effect this virus can have on their children” because "The incidence of children born with congenital cytomegalovirus can be greatly reduced with public education and awareness," and designated the month of June as "National Congenital CMV Awareness Month," in 2015, the American College of Obstetricians and Gynecologists (ACOG) has reversed it's decision to instruct their pregnant patients on what it takes to prevent CMV transmission (you can read about that in the NY Times article). ACOG's new position on CMV instruction, recently revised in 2015, is that patients will think such guidelines difficult to implement because "they often are considered impractical or burdensome." (see page 1514 of the ACOG Practice Bulletin (June 2015), [151 Cytomegalovirus, Parvovirus B19, Varicella Zoster, and Toxoplasmosis in Pregnancy (June 2015])